Blood Cancers & Disorders Support Group

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Comment

Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...

https://connect.mayoclinic.org/comment/1144372/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20 7:36am

Comment

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

Comment

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11 5:22pm

Comment

First time joining a group here used mayo for research but now ...Im recently placed in...

https://connect.mayoclinic.org/comment/879738/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

Welcome to Connect, @wesm. Polycythemia Vera is a condition where your body is producing too many...

https://connect.mayoclinic.org/comment/1094588/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 26 11:40am

Comment

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28 6:56am

Comment

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Comment

Hi @ettap, this post was years ago but curious how things are going now? If I'm...

https://connect.mayoclinic.org/comment/919567/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Comment

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021