High Levels Of B12

Posted by cocoa @annieecruz, Apr 29, 2018

What type of doctor handles test like the MMA Urine test and the HoloTC? Test related to how your body breaks down/absorbs and transport/bonds B12? My B12 test came back extremely abnormal.

Liked by amaedaisie

@annieecruz, if you don't mind sharing, did you have a medical provider order the test and was there a particular concern for your provider to order the test?

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I will suggest you to ask any doctor on this, they may be able to guide you on it.

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New to blood cancer, I am working with a hematologist-oncologist, who has an extraordinary range of skills. I would suggest you identify one – on your own or through your internist. Good luck!

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I too have had two B12 labs done. One in the 1800s and one 1700s. I am interested in anyone’s experience with this.
Thank you.

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Hello @annieecruz

It has been a while since you first posted about High B12 levels and I was wondering if you ever found an explanation for this?

I would love to hear from you. Will you post an update?

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@emyliander

I too have had two B12 labs done. One in the 1800s and one 1700s. I am interested in anyone’s experience with this.
Thank you.

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Hello @emyliander

I was also wondering about you as well. Have you found any explanation for these high B12 numbers?
I hope you are doing well.

How are your feeling? Will you post again?

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No, I’ve had multiple blood tests which were normal, my doc wants to do a PAP & get my mammogram done, then send me to an Endocrinologist. I’ve been under the weather with a month long cold, on antibiotics for a sinus infection, and having trouble with my stomach due to IBS, Microscopic Colitis. My Celiac Sprue is under good control. I’m having trouble with bloating even though I’ve lost a few pounds, due to changing to vegetarian diet and no dairy or sugar, to see if that helps my stomach. No success yet.
Thanks for your interest,
Emy.

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@hopeful33250

Hello @emyliander

I was also wondering about you as well. Have you found any explanation for these high B12 numbers?
I hope you are doing well.

How are your feeling? Will you post again?

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I’m trying to figure out why my B12 is always 2000 in blood work. Drs say I don’t need Supplements I have it stored. ??
But I have high SIBO LEVELS. 81. ?? GI. Issues. Degenerating disc. Periphial Neurapathy whole body nerve pain. I understand that B12 not being used properly in the body can cause these symptoms. Chronic fatigue
Does anyone have the same experience???

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Hello @12061948 The medical profession moves very slowly. My mammogram was neg, still waiting for results of PAP. I said that my MD was referring me to an Endocrinologist, but none in my area want to work with this, I’m not surprised, it doesn’t seem to fit their criteria. So I called my MD and asked for a referral to our local cancer center, since this is often the cause of high B12, and is what we are trying to eliminate as a cause. So I hope to be going there soon and will update when I have any results.I am not diagnosed with Chronic Fatigue Syndrome, but have suffered from daytime sleepiness for yrs and take medication for it which helps but doesn’t eliminate it. I find that many doctors are not aware of the causes for high B12. I hope to either enlighten them or be enlightened myself. I hope you are able to get some results from your medical people. Emy.

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@12061948

I’m trying to figure out why my B12 is always 2000 in blood work. Drs say I don’t need Supplements I have it stored. ??
But I have high SIBO LEVELS. 81. ?? GI. Issues. Degenerating disc. Periphial Neurapathy whole body nerve pain. I understand that B12 not being used properly in the body can cause these symptoms. Chronic fatigue
Does anyone have the same experience???

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Hello12061948, I have talked with a doctor at our cancer center, he feels my high B12’s are probably due to inflammation since I have GI issues also. To give me peace of mind more than anything, he ordered blood work for several cancer markers. The results take about 3 weeks so I have to be patient. I’m thinking that he is probably right. I go for my colonoscopy at the end of the month so I think I’ve covered all the bases. I will post my blood results when I get them. Hope things are going well for you. Emy.

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I have recently had two B12 labs, both in 2000+. It was part of a series of tests ordered because I had just been diagnosed{Dec.19th ] with Small Fiber/autonomic peripheral neuropathy in a non-length dependent pattern. My neurologist had anticipated I would have a B12 deficiency???…All of my extensive testing looking for the cause of the neuropathy were negative except for the B12…. I am being referred to an oncologist and we are NOW looking for a cause of the high B12 as well as the cause of neuropathy? I am very interested in reading your comments because there is very little info available, also I am so happy to have found this group.

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@12061948

I’m trying to figure out why my B12 is always 2000 in blood work. Drs say I don’t need Supplements I have it stored. ??
But I have high SIBO LEVELS. 81. ?? GI. Issues. Degenerating disc. Periphial Neurapathy whole body nerve pain. I understand that B12 not being used properly in the body can cause these symptoms. Chronic fatigue
Does anyone have the same experience???

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hello 12061948, All my cancer markers came back negative, I had my colonoscopy, had a few small polyps removed, and was told I had an area of redness in my colon which the doc biopsied. I have an appointment to go back for the results the end of January, but may go to the hospital and get my results before then. My PAP came back normal also, so there is not anything else I can think of to explain the high B12s, so at this point I’ll just wait and see what happens.
I’d still be interested to know if any one else finds a reason for their high B12’s. I wish you all well. Emy

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@marlenerose33

I have recently had two B12 labs, both in 2000+. It was part of a series of tests ordered because I had just been diagnosed{Dec.19th ] with Small Fiber/autonomic peripheral neuropathy in a non-length dependent pattern. My neurologist had anticipated I would have a B12 deficiency???…All of my extensive testing looking for the cause of the neuropathy were negative except for the B12…. I am being referred to an oncologist and we are NOW looking for a cause of the high B12 as well as the cause of neuropathy? I am very interested in reading your comments because there is very little info available, also I am so happy to have found this group.

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Welcome to Connect, @marlenerose33.

Along with some more information on the significance of b12 levels, https://medlineplus.gov/ency/article/003705.htm I found this recent study that I thought might interest you:
"An observational study of vitamin b12 levels and peripheral neuropathy profile in patients of diabetes mellitus on metformin therapy” https://www.sciencedirect.com/science/article/abs/pii/S1871402117302874

With regard to neuropathy, very often there is no identifiable cause – there are a number of conditions that can trigger it. May I ask if you noticed anything that might have triggered the neuropathy?

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@Kanaaz Pereira. After extensive blood testing my neurologist has not found a cause for my neuropathy. All of my tests were negative except for the B12>2000. I am not diabetic, my MS was eliminated as a cause, my blood tests sent to Mayo Clinic eliminated any autoimmunity as a cause, I am up to date on mammograms and colonoscopies. At this time I am being referred to a neurologist who specializes in Autonomic Peripheral Neuropathy and to an oncologist. My neuropathy has been ongoing for at least 7 yrs.

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Are you talking about vitamin b12?

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