Blood Cancers & Disorders Support Group

I’ve been getting treated for strange heart anomalies for nearly a year now and been consistently getting labs will elevated RBC, hemoglobin, and hematocrit levels....

Hi. I’ve been struggling with Polycythemia Vera for 2 years. My treatment began with phlebotomies, but not helpful. Then put on Hydrea, but caused multiple...

Newly diagnosed and am considering getting another tattoo but concerned about whether tattooing is problematic

what foods should I eat ?

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...

My bone pain with PV is becoming worse. Has anyone found anything that helps.

Has anyone been experiencing Nueropathy with PV? The tops of my hands and feet/ shins are burning. I’m having tingling in my face also. I...

When is hydroxurea usually added to treatment for Polycemia Vera? I am currently on low dose aspirin

Is there anything I can do for fatigue on a home basis? Diets, iron, anything? I’m low on ferritin, my count was 49.9% so they...