Blood Cancers & Disorders Support Group

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Comment

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact...

https://connect.mayoclinic.org/comment/776531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

Comment

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Comment

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Comment

Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...

https://connect.mayoclinic.org/comment/691691/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Comment

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Comment

Hello Puddy @cookegmailcom, I'm glad to see you have connected with @ejrquast. Here is the link...

https://connect.mayoclinic.org/comment/1383202/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Comment

Hi, I've had IgM lambda MGUS for a few years that has been advancing to Waldenstrom"s...

https://connect.mayoclinic.org/comment/1356871/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Comment

@kabue9, I moved your question to the Blood Cancers & Disorders support group to this discussion:...

https://connect.mayoclinic.org/comment/1278128/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Comment

@amazon13, what is your current diagnosis? What test result indicated that you didn't have Waldenström macroglobulinemia?...

https://connect.mayoclinic.org/comment/1244112/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

I was diagnosed with MGUS in 2022. I had a M spike in my bloodwork. I...

https://connect.mayoclinic.org/comment/1159810/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

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