Blood Cancers & Disorders Support Group

Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...

I have Waldenstrom's macroglobulinemia and read about a treatment for viscous (thick) blood.It's called Plasmapheresis which is essentially the removal, treatment and return of blood...

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....

61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...

Diagnosed 6 months ago after losing 25 lbs. down to 100 at 5’6”. IGN almost 2000. Extreme fatigue. Went in prednisone and Imbruvica. I’m went...

I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

I had a bone marrow biopsy back in February and was diagnosed with Waldenstrom's. I'm still learning about my cancer and wonder if I should...

Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?

Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...

Diagnosed over a year ago. Hot/ cold sweats worse than before after last rutuxin infusion. Stopped taking Imbruvica on my own and prednisone. Need fan...

Second round of omigam seems to be helping I. Addition to my prescience and bruins and dexamethosone. But iga at all time low. Dr says...

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...

Newly diagnosed with Walderstroms and scheduling 1st Infusion Treatment. How should my spouse and I prepare for this new experience. Looking for the wisdom of...

My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...

Why would Dr order brain and brain stem mri after three years worth Waldenstroms. Numbers up and down.

Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...

Anyone out there taking Brukinsa for Waldenstrom and Skyrizi for Crohn's/ulcerative colitis. If so, what has been your experience?