Blood Cancers & Disorders Support Group

Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...

Hello. I know this is a shot in the dark, but that’s where I am. I am 57 and was diagnosed with Waldenstrom’s Aug 2021,...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

I was diagnosed in February with Waldenstrom's. Here's my blood work just before the bone marrow biopsy. My IgM count last month was 634. CBC...

Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?

Diagnosed 6 months ago after losing 25 lbs. down to 100 at 5’6”. IGN almost 2000. Extreme fatigue. Went in prednisone and Imbruvica. I’m went...

Second round of omigam seems to be helping I. Addition to my prescience and bruins and dexamethosone. But iga at all time low. Dr says...

Why would Dr order brain and brain stem mri after three years worth Waldenstroms. Numbers up and down.

Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...

I had a bone marrow biopsy back in February and was diagnosed with Waldenstrom's. I'm still learning about my cancer and wonder if I should...

Diagnosed over a year ago. Hot/ cold sweats worse than before after last rutuxin infusion. Stopped taking Imbruvica on my own and prednisone. Need fan...

Any idea what to expect? Oncologist sending me to neurologist🥲

Anyone out there taking Brukinsa for Waldenstrom and Skyrizi for Crohn's/ulcerative colitis. If so, what has been your experience?

Dr just added prednisone to my meds even though I take dexamethosone . Is this normal protocol? I get Ruxience, and octigam infusions as well.?Been...

My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...

Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...

I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...