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Discussions (91)
Multiple Myeloma
My RA doctor sent me to an Oncologist and her reason to me included such words that I could not get it. All I remember...
Last active: Jun 23, 2024
Coffee and Multiple Myeloma
Does anyone have information on whether coffee has a causal relationship with multiple myeloma? I have seen mixed results. I LOVE COFFEE.
Last active: Jan 7 11:54am
Smoldering Multiple Myeloma and symptoms
I have had MGUS since 2021 and now have smoldering multiple myeloma. I am now feeling something new. A symptom. Like a twinging or dull...
Last active: Jan 6 7:16am
Multiple Myeloma and your Eyes
I have MM and having trouble with my eyes, they feel real tired and have to stop reading because of this. also can't focus good...
Last active: Mar 10, 2024
A Summary of My Multiple Myeloma
DiagnosisI was diagnosed with Multiple Myeloma on Sept 28, 2022 (age 53). My diagnosis was a result of visiting my general practitioner for the first...
Last active: Jan 2 3:23pm
Waiting on Multiple Myeloma testing
5 months of varying, increasing symptoms (weight loss 25 pounds in 2 months, decreased appetite, tired, difficulty sleeping, headaches on back of right side migrating...
Last active: Aug 18, 2021
Bispecific antibodies For Multiple Myeloma
Good Day, Has anyone investigated or have been offered Bispecific antibodies to treat multiple myeloma or for any type of cancer? If so, have you...
Last active: Aug 31, 2025
Is anyone on carfilzomib (Kyprolis) for multiple myeloma?
I have been on carfilzomib, dex, lenalidomide and Daratumumab for five cycles. Both carilzomib and lenalidomide can caus blood in urine. I have had this...
Last active: Jul 20, 2025
A 10 year fight with Multiple Myeloma
Hi, my beloved brother, Michael died from leukemia in April of this year. He had multiple myeloma for over 10 years. Amazingly at 1st he...
Last active: Aug 4, 2025
Mobility during multiple myeloma treatment
I'm the sole caregiver for my wife who was diagnosed with MM late in 2019. The journey to her eventual diagnosis started on August 11,...
Last active: Mar 29, 2020
Smoldering Multiple Myeloma (SMM). Questions and Answers
I wanted to start a discussion specifically on SMM. Asking specific questions about time of diagnosis, like age, m-spike level, protein in urine level and...
Last active: 3 days ago
Current diagnosis is Amyloidosis and multiple myeloma
I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...
Last active: Jul 14, 2018
Multiple myeloma with T (11.14) translokation
My wife is 76 years old and was diagnosed with multiple myeloma on 04/25/2024. She is being treated with Isatuximab + Bortezomib + Dexamethasone. She...
Last active: Jul 29, 2025
Multiple Myeloma: Not a candidate for chemo, what's next?
My 66 year old sister was diagnosed with Multiple Myaloma in January 2020. She is now in hospice. Doctors say her blood levels do not...
Last active: Mar 19, 2020
Articles about New Research in Multiple Myeloma
Immix Biopharma Inc. shares were up 16% at $2.15 after the company said its Nexcella subsidiary saw positive clinical data from its ongoing Phase 1b/2...
Last active: Apr 28, 2023
Best Medicare Insurance for MGUS and Multiple Myeloma?
As it is time for Medicare insurance decisions I was wondering what kind of experience some of you have had with the Medicare Advantage plans...
Last active: Nov 29, 2023
First diagnosed with restless legs, and then multiple myeloma?
Hello, I’m really desperate suffering with chronic pain, autoimmune disease, diseases, fibromyalgia, chronic fatigue, and 25 other medical conditions, but the restless legs is just...
Last active: Dec 5, 2025
How to know whether smoldering myeloma or multiple myeloma?
Hello, hope you all are doing well!I have a situation with my mom(65 years old). From September my mom was on viral situation. When we...
Last active: Jan 29, 2024
Multiple myeloma: When to treat? When not to treat?
i got the diagnosis in december.doctor says that i do not need any tretment.that the only thing to do now is to monitor and wait.my...
Last active: Jan 21, 2024
What are my chances that MGUS turns into multiple myeloma?
What are my chances that MGUS turns into multiple melanomaWhat precautions can I do?
Last active: 3 days ago