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jenga543
@jenga543

Posts: 3
Joined: Oct 22, 2017

Waiting on Multiple Myeloma testing

Posted by @jenga543, Oct 22, 2017

5 months of varying, increasing symptoms (weight loss 25 pounds in 2 months, decreased appetite, tired, difficulty sleeping, headaches on back of right side migrating to right eye with blurred vision (blurred vision has ceased, but still 2 headaches per day, difficulty grasping/writing, severe hip pain (biggest complaint), difficulty walking, all has led to different tests, all negative (CT scan, bloodwork). Whole body bone imaging shows “subtle altered marrow changes noted in the proximal femora bilaterally…no abnormal uptake identified within hip joints”
Doctor now suspects multiple myeloma and tested 6 days ago (blood and urine). On hydrocodone for pre-existing sciatica, doctor prescribed prednisone and gabapentin but there has been no relief for the hip pain. 50 year old white male. Increasing the hydrocodone hasn’t provided relief. How long do these test results take to determine if multiple myeloma is the diagnosis? And does any of this sound familiar?

REPLY

Hi @jenga543, welcome to Connect.

Thank you for taking some time to share some information about your friend and wondering about how long it takes for a multiple myeloma diagnosis.

I would like to invite @beckyoutlaw1115, @jan52241, @sheilasfight, @missouri, @mrsdoc, @mehz4802, @scmsable, @user_ch3a1e07f, @mamaellie, @totopeg, and @larryfairtax to this conversation as they have all discussed having, or caring for someone, multiple myeloma and may be able to share a bit about their experience of being tested and diagnosed.

@jenga543, If you don’t mind sharing, how has your friend responded to the prednisone and gabapentin? The waiting period for any diagnosis can be difficult, how are both of you doing?

@JustinMcClanahan

Hi @jenga543, welcome to Connect.

Thank you for taking some time to share some information about your friend and wondering about how long it takes for a multiple myeloma diagnosis.

I would like to invite @beckyoutlaw1115, @jan52241, @sheilasfight, @missouri, @mrsdoc, @mehz4802, @scmsable, @user_ch3a1e07f, @mamaellie, @totopeg, and @larryfairtax to this conversation as they have all discussed having, or caring for someone, multiple myeloma and may be able to share a bit about their experience of being tested and diagnosed.

@jenga543, If you don’t mind sharing, how has your friend responded to the prednisone and gabapentin? The waiting period for any diagnosis can be difficult, how are both of you doing?

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Thank you so much. There is no relief or change with the prednisone and gabapentin. Initially, he did feel some relief with the original prednisone rx, but has not gotten any relief with the 2nd round. He continues in pain and I believe he has fallen several times, but he won’t admit that to me. He is NOT currently affiliated with Mayo, but we are looking into that, as his current doctor is not returning his calls regarding his test results and pain level. Quite frustrating. The hip pain is the most concerning complaint, as he has great difficulty walking. He has 4 phone calls into his doctor’s office. I was just trying to find out an idea of how long before the test results become available. It’s not a lot to go on, I was just getting frustrated and trying to reach out. Thank you for your time.

After 5 phone calls, we have learned that the test results are negative for multiple myeloma. We will be pursuing other resources (medical providers) to determine the cause of the pain. Thank you.

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