I'm the sole caregiver for my wife who was diagnosed with MM late in 2019. The journey to her eventual diagnosis started on August 11, 2019. On that day she fractured L1 and had it repaired on Sept 5, 2019. For the 3-4 weeks between these dates she was bed bound. Immediately after her repair of L1 by kyphoplasty she was up and using a walker and sitting in a chair. Everything at that point seemed to be progressing smoothly until she leaned over and felt a sharp pain in her lower back on Oct 5, 2019.
The source of this new pain has never been verified although we were admitted to an ED for the pain and they discovered through blood testing that she had MM. Very sorry to take so long with this story but it is relevant to my concern.
We were transferred to the closest cancer clinic where her oncologist/hematologist found an orange sized plastocytoma on her right hip which we believe was the source of the pain on Oct 5th. Since this time she has received 3 rounds, 9 total treatments of bortezemib, Cytoxin and dexamethasone. In addition to the treatments she has had awful painful sores on both ends due to the cytoxin (I'm told) and after that she contracted painful shingles that won't resolve.
With all she's been through despite having some success treating the MM her quality of life is not good, especially considering she still is bed bound essentially for the past 7 months. Now her legs are not capable of supporting her body per our physical therapist. My biggest question now is should we allow her to focus on her mobility and gain strength by reducing or changing her chemo regimen? We've already been told she's too weak for a SCT which means she will continue with chemo I guess indefinitely. What options have been tried/proven for patients who have significant challenges like this in addition to their cancers?
Again, thanks for indulging me. Any help is greatly appreciated.