Blood Cancers & Disorders Support Group

I have ET and take 500mg of Hydroxyurea daily. I am wondering if anyone takes the medication at night and find it helps with the...

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs Have ET (Jak2) diagnosed August 2022...

Hi. I have just been diagnosed with ET and my bone marrow tests show I would be a good candidate for stem cell replacement. Anyone...

I was recently diagnosed with ET, JAK2 mutation. Currently taking 500mg Hydrea and low dose aspirin. Question: Does anyone know how long you can live...

I have been reading about Rapamycin and am curious if anyone has any experience with its ability to reduce platelet count and/or stroke risk in...

Diagnosed with ET with Jax2, 500mg of Hydroxyurea 5 days a week since March of 2025. I am experiencing pain & sensitivity in my teeth....

I'm looking at relocation and am trying to find the names of the specialists for MPN (ET) in Scottsdale. Was told at an LLS conference...

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I...

If you are a younger ET patient (my son 38) wouldn’t the doctor prescribe pegasys (or other interferon therapy) vs HU if he had to...

My doctor recently diagnosed me with ET. My platelets on 6/2 were 1189. I have to go back in two weeks for labs and another...

Diagnosed with ET with JAK2 mutation June 2025. Started hydroxyurea and low dose aspirin. Platelets were 393 last labs. I normally take blood pressure at...

Hi, I was diagnosed with polycythemia Vera and et in Dec at the age of 75. I take hydroxyurea (11 pills per week) and just...

I just had my first 3 month blood test after being diagnosed with ET and JAX2; I'm 75 yr old. I've only been on baby...

I am 73, female and am taking 3 days of HU weekly (500mg). My platelets have come down from 1200 in March to 350 range...

Recently diagnosed with ET (MPL), I'm taking low-dose aspirin daily, as well as 1 500 MG HU each week. I'm 69, platelet counts in the...

I have asked my hematologist and a hematologist at Mayo if there is an association between stress fxs and MPN, both have said no. Does...

Hi there. My husband has "pure" ET (which I'm assuming means it is from a genetic flaw, but I really don't know) and has been...

My mother has ET and has been on Hydroxyurea (500mg) for about 7 months. Recently, due to GI issues and colitis seen on a CT...

I have been reading posts and haven't seen any which address the relationship of ET and stroke. I have had TIAs and was hospitalized for...

I have ET and was diagnosed 2 years ago. I am 50 Years old and my latest platelet count was 1,183,000. I only take a...