Any recommendations for ongoing mild headaches with Hydroxyurea?

Posted by kalamar111 @kalamar111, Jan 3 9:59pm

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs

Have ET (Jak2) diagnosed August 2022

Thanks

Lorne

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I'm not sure if this will work for you as I have not experienced any headaches since starting HU in April 2021… I take 2 to 3 (depending on the day) 500 mg pills daily the same time every day.. In my case , that's at 7PM which the vast majority of times is after I eat dinner.. Good luck and hope this may help…

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Hi Lorne…welcome to the site,

Are you taking it with a full glass of water? Are you drinking a minimum of 64 ounces of fluid a day?

I was diagnosed with ET JAK2 in June 2022. I started having daily headaches while taking Hydroxyurea 500 mg each day. Hematologist took me off HU for a month. I was then started again on 500 mg HU every other day. Headaches are gone except occasionally. It seems to be working as platelets have kept dropping last two months. She is letting me continue this way with monthly labs to check progress.

Eileen

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@eileen11108

Hi Lorne…welcome to the site,

Are you taking it with a full glass of water? Are you drinking a minimum of 64 ounces of fluid a day?

I was diagnosed with ET JAK2 in June 2022. I started having daily headaches while taking Hydroxyurea 500 mg each day. Hematologist took me off HU for a month. I was then started again on 500 mg HU every other day. Headaches are gone except occasionally. It seems to be working as platelets have kept dropping last two months. She is letting me continue this way with monthly labs to check progress.

Eileen

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Eileen. Thanks. Yes re fluids. I will talk to my Doctor regarding every other day for Hydroxyurea. I can handle the headaches as I am worried about being off the Hydroxyurea. Next Doctor’s appointment is early February. Have a great day!!

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@dale1k

I'm not sure if this will work for you as I have not experienced any headaches since starting HU in April 2021… I take 2 to 3 (depending on the day) 500 mg pills daily the same time every day.. In my case , that's at 7PM which the vast majority of times is after I eat dinner.. Good luck and hope this may help…

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Thanks. I do take the HU around same time. It seems to affect us all differently. Appreciate your help!

Lorne

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