Blood Cancers & Disorders Support Group

I would like to know what treatments are available for MDS.I am a 78 year old male with MDS. I have been getting monthly injections...

My 67 yr old sister has been in the hospital since June 3rd and I have to make a decision for her. She was diagnosed...

Wen do you need to start treatments for this disorder an wat best treatments are there

Hi guys, I am 41 years old and have recently have numerous low WBCs over about 6 months and I also have platelets of differing...

I have just been diagnosed with MDS, and have so many questions. I will be going to Mayo Clinic for follow up opinions and understanding...

I have myelodysplastic syndromes MDSI got my blood tests results back and some have changed. Some went down, some went up and some stayed the...

Hi, I haven’t posted in a while however I follow daily. I keep seeing there are different types of MDS and it’s important to know...

Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...

8 months ago I was diagnosed with low risk MDS. I had a bone marrow biopsy last week and my Doctor just call on the...

Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...

Practice nurse recommended bloodwork for MDS during the off week in Revlimid cycle. Doctor thought it didn’t matter.

I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.

I just saw the pathology report from the hospital in regards to my low white blood counts and low b12 level. They noted DDX41 (R525H)...

As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...

My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...

my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...

My wife's CBC blood counts have been low for 18 months (see chart). Is there any chance that the numbers are, in fact, false readings?...

I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...

Hello I have just completed one cycle of Revlimid 10mg for MDS del5q. However after the first week, a horrible lichen sclerosus flare began, despite...

Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...