Blood Cancers & Disorders Support Group

Practice nurse recommended bloodwork for MDS during the off week in Revlimid cycle. Doctor thought it didn’t matter.

I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.

Hello I have just completed one cycle of Revlimid 10mg for MDS del5q. However after the first week, a horrible lichen sclerosus flare began, despite...

I just saw the pathology report from the hospital in regards to my low white blood counts and low b12 level. They noted DDX41 (R525H)...

As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...

My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...

Hello all-I’m back to this group because once again I’m lost and searching for answers. This Easter Sunday is my husband’s rebirth day, 3 years...

I have myelodysplastic syndromes MDS I got my blood tests results back and some have changed. Some went down, some went up and some stayed...

my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...

My wife's CBC blood counts have been low for 18 months (see chart). Is there any chance that the numbers are, in fact, false readings?...

,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...

Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...

I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...

Can you tell me your experience and your doctor’s cautionary information about long term injections of Filgrastim? You may know this by other names such...

Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...

Hi, I have MDS and just got my latest blood test Tuesday. He was not as chatty as usual just said my platelets were the...

Hello everyone. I had written a month ago or so that I was trying to find a new doctor that deals with blood issues/cancers. Yay...

My husband was recently diagnosed with MDS-IB2, a total shock to us. We found out on a Friday and he started Vidaza on Monday. He...

My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...

I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...