Connect
Public Support Group 986 total results
Discussions (63)
Lightheaded with ET
Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...
Sudden gross hematuria
I was diagnosed with MPN JAK-2 last year. Polycythemia Vera and/or essential thrombocytopenia Initially needed 2 phlebotomy’s and 2 Gm/day Hydroxyurea. Labs tanked so slowly...
What are pros of hydroxyurea vs other methods of lowering platelets?
I am 47 & received my official diagnose today. I am JAK 2 mutation only & after a bone marrow biopsy & further genetic testing...
Connect