Blood Cancers & Disorders Support Group

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...

After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...

I am 79 with a one year diagnosis of ET JAK2. My platelets were slowly rising for several years before diagnosis and my kidney function...

My 76-year-old mother (ET, JAK2+) has been on Hydroxyurea (500mg, 3x weekly) for 7 months without prior GI issues. Recently, after resuming this dose following...

I was diagnosed with POLYCYTHEMIA VERA in 2017 at age 57 and shortly thereafter with RA (I am on Rinvoq for RA). I was and...

I am 73, female and am taking 3 days of HU weekly (500mg). My platelets have come down from 1200 in March to 350 range...

‏hello everyone good morning And it’s great to talk to you.At the beginning of 2022, I began to feel terrible pain in my stomach. I...

Hello, I’m 56 and was recently diagnosed with PV, Jak2 positive. I was lucky to catch it at the beginning stages from an annual lab...

I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has...

My platelets have been at the high end of normal (394 to 399) since 2016. A few weeks ago, they were 401. The doctor retested...

Hello, My name is Isabelle, I’m 55 and I was diagnosed a month ago with Essential Thrombocythemia, JAK2 mutation. I’m waiting on my bone marrow...

Hi, I continue to research and learn from others with ET. I am 57, and diagnosed this past year. Jak2 positive, ET. I may have...

A year and a half ago, I presented a hemoglobin of 7g with no evidence of bleeding in upper or lower GI as per scans....

Hello, I am wondering what the symptoms are of beginning spleen involvement in ET. I was dx'd with ET in 2013 . My Internal Medicine...

I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...

I learned I had ET through a routine blood test during my annual Medicare checkup last fall. Since then I have found I have the...

Hello, I have just been diagnosed with MPN with JAK2 mutation and negative for the other BCR/ABL 1 mutations. Platelets are 639 on 4/22/24. Everything...

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling not myself for almost 2 years now. Below I...

Hello, am I crazy? I'm a 23-year-old biological female with a complex medical history. I'm going to list my pre-existing conditions, before I started hematological...

Has anyone taken Vonjo (pacritinib) a JAK 2 Inhibitor? If so what were the effects and how long were you able to take the medication?...