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Public Support Group 552 total results
Discussions (47)
What's the expected trend and variance in blasts percentage?
I have Myelofibrosis. I am interested in any experience others have had with the trend in blasts percentage and in particular the variation in this...
F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!
I am a 51 year old woman who was diagnosed with MPN with a JAK2 9 years ago at West Cancer in TN. They never...
Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...
Essential Thrombocytosis (ET): What are options with aspirin allergy?
Hi - I am about to get a bone marrow biopsy because my platelets are 965. I understand that I am likely to start hydroxyurea...
New Dr different diagnosis
Hello everyone. I had written a month ago or so that I was trying to find a new doctor that deals with blood issues/cancers. Yay...
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