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Public Support Group 603 total results
Discussions (53)
Does Jardiance have serious interactions with Jakafi?
I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...
PIM-1 inhibitors: anyone participating in this trial?
Hello BMT community - anyone participating in this trial:PIM-1 inhibitors are targeted therapeutic agents designed to block the activity of PIM-1 kinases, which are enzymes...
Waiting for Donor confirmation, for BMT
Hello. Diagnosed CMML-1 July 2025, Myelofobrosis 3+/3 in January. It was determined in January that I need an Allo BMT as soon as possible. This...
What's the expected trend and variance in blasts percentage?
I have Myelofibrosis. I am interested in any experience others have had with the trend in blasts percentage and in particular the variation in this...
This is new, overwhelming. Wife is diagnosed with PV, we need support
After a long and stable treatment for Polycythemia Vera, my wife (age 73) has been diagnosed with High Risk Myelofibrosis. Just one month ago we...
Triple-Negative Polycythemia Vera with MF-1 – Looking for Similar Case
Hello everyone, I would like to share my case and connect with anyone who may have a similar diagnosis or experience. I am a 33-year-old...
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Medicines for reducing fibrosis in polycythemia vera patients
I am a PV patient, currently age 50, JAK2 verified, producing a tremendous amount of red blood cells (started treatments at a 72% Htc). Besides...
F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!
I am a 51 year old woman who was diagnosed with MPN with a JAK2 9 years ago at West Cancer in TN. They never...
Anyone experienced Bone Marrow Transplant with TP53 mutation?
After 10 healthy years, living with Essential Thrombocythemia w/JAK2 mutation and taking Hydroxyurea, my blood disease has transitioned into Myelofibrosis. I'm now taking Jakafi for...
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...
Essential Thrombocytosis (ET): What are options with aspirin allergy?
Hi - I am about to get a bone marrow biopsy because my platelets are 965. I understand that I am likely to start hydroxyurea...
New Dr different diagnosis
Hello everyone. I had written a month ago or so that I was trying to find a new doctor that deals with blood issues/cancers. Yay...
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