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Public Support Group 635 total results
Discussion
Myelofibrosis
Good morning fellow Myelofibrosis patients I had a regular physical with my PCP this week. She found a slight heart murmur. This was new and...
Discussion
Myelofibrosis, Ojjaara and anemia
Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...
Discussion
What are treatments for myelofibrosis?
What are treatments for mylofibrosis! I was just diagnosed with it?
Discussion
Jakofi or BMT for Myelofibrosis
Evening to fellow Mayo Connect My visit with my provider showed continued increase in spleen size. I’m in a clinical trial that has resolved my...
Discussion
Are there support groups for Myelofibrosis?
Diagnosed with Myelofibrosis living in California. Would like to find out about group support.
Discussion
Myelofibrosis w/ JAK2 mutation
I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...
Discussion
Primary Myelofibrosis diagnosis in 40’s
I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...
Discussion
Anyone have Myelofibrosis (CMS-HCC)?
Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...
Discussion
Is Myelofibrosis (MF) the same as Myelodyplastic syndrome?
Is Mylofibrosis the same as mylodisplastic syndrome?
Discussion
Anyone want to talk about Myelofibrosis?
Anyone out there wishing to discuss above diagnosis?
Comment
Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...
https://connect.mayoclinic.org/comment/675825/
Comment
@davi0937 This is a great podcast and source of info for Myelofibrosis. Thank you for posting!
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