Blood Cancers & Disorders Support Group

Evening to fellow Mayo Connect My visit with my provider showed continued increase in spleen size. I’m in a clinical trial that has resolved my...

Anybody in this group diagnosed with Myelofibrosis taking Ojjaara and still suffering from anemia? Low red blood cells, platelets are low, hemoglobin low, white blood...

What are treatments for mylofibrosis! I was just diagnosed with it?

Diagnosed with Myelofibrosis living in California. Would like to find out about group support.

I have recently been diagnosed and want to know people's experiences. Has anyone been through a clinical trial? Taken hydroxyurea? Not done anything? Worked with...

I was shocked to learn my diagnosis because of my age. So many people are diagnosed with PMF in there 60’s. Is there anyone else...

Anyone else have Myelofibrosis (CMS-HCC)? Was diagnosed with it beginning of Dec 2025.Currently taking Jakafi to slow progress, of course not a cure but it...

Is Mylofibrosis the same as mylodisplastic syndrome?

Anyone out there wishing to discuss above diagnosis?

I was diagnosed with myelofibrosis two years ago and started Hydrea 250 mg daily with no adverse results.Now Waldenstroms lymphoma has been added to the...