Blood Cancers & Disorders Support Group

I am a 51 year old woman who was diagnosed with MPN with a JAK2 9 years ago at West Cancer in TN. They never...

I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...

42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...

Just told that I have a Jak 2 mutation. Anyone else been thru this ?

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?

I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...

While I know JAK2, TET2, CALR, etc. are the most common genetic mutations in PV, does anyone else have it with the HFE gene (with...

Diagnosed with ET with JAK2 mutation June 2025. Started hydroxyurea and low dose aspirin. Platelets were 393 last labs. I normally take blood pressure at...

I was recently diagnosed with ET, JAK2 mutation. Currently taking 500mg Hydrea and low dose aspirin. Question: Does anyone know how long you can live...

The meeting reported on new developments in JAK2 inhibitors and the shift to tracking the allele burden in addition to tracking just hematocrit. https://mailchi.mp/e3b49744f1a5/new-developments-in-mpn-research-10612935?e=2d979fc2d3

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs Have ET (Jak2) diagnosed August 2022...

I have essential thrombocytosis with CALR exon 9 mutation, no JAK2. I've been taking 500 mg hydroxyurea every other day for 2 1/2 years. About...

Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...

I just got diagnosed today with ET. My platelets have been high for years and 6 years ago I learned I have a Jak2 mutation....

Diagnosed with PV with JAK2 mutation In November. Did not do well on Hydroxyurea. I just started BESREMi at 100mg every 2 weeks. I have...

I am ET/Jak2 — 72 years oldDiagnosed July 2024HU 500mg dailyAre the following symptoms from the HU or ET itself:Lightheaded (feel a bit unbalanced/dizzyBrain fogItchyI...

Im 64 got diagnosed with ET about 2 years ago based on blood work (Jak2). My hematologist says I’m textbook ET My count is at...