Blood Cancers & Disorders Support Group

Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?

4-months ago I went for a full blood workup, 1st one in 7-years. To my surprise my WBC was 1.6, Platelets 75, Hemoglobin level of...

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

I was told yesterday by my eye doctor it is time for cataract surgery. I have an evaluation scheduled for November 1st. I have sent...

Hello Anyone dealing with MDS and how long and how are you doing?

I have been diagnosed with MDS. It started with weight loss about 4 years ago and no other symptoms. Eventually, I gained some of the...

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...

First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...

Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...

I would like to share information with others. Thanks

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?

Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...

For 13 years, doctors and universities thought I had WIAHA. After a recent biopsy, it turns our I have MDS with a mutation. The mutation...

Anyone dealing with these?

After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...

I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...

Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...

My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...