Blood Cancers & Disorders Support Group

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

Not responding to lenalidomide after 5 weeks, what are the best options?

I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...

Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...

I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...

I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?

is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...

I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?

Can anything help ongoing fatigue from MDS?

Wen do you need to start treatments for this disorder an wat best treatments are there

@bajaj

Can someone explain how or why platelets go up or down quickly. My diagnosis was MDS after a bone marrow biopsy and I was sent...

Has anyone with MDS used Neupogen (filgrastim) or similar prior to minor surgery to reduce the risk of infection? My concern is that even a...

I have been studying MDS and SS (both of which I have) and am beginning to see an overlap. I would appreciate others input.

my husband has RAEB and was recently put on Procrit. Does anyone have any experience with this drug for any of the MDS diseases? Am...

As a recent (12 mo) MUD stem cell transplant recipient I am faced with making a decision on pursuing a COVId vaccine. Prior to diagnosis...

My mom who is 85 was diagnosed with MDS in 2019. Started with anemia and now progressed to CMML 2. We started 5 days of...

I am Vicki, age 71, and was diagnosed with AML this month. It started with an MDS high risk after biopsy in April. Has since...