Blood Cancers & Disorders Support Group

My dad is 80 yrs old...last July he got sick with pneumonia...admitted to hosp and labs were off. After a month or so a d...

4-months ago I went for a full blood workup, 1st one in 7-years. To my surprise my WBC was 1.6, Platelets 75, Hemoglobin level of...

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

I was told yesterday by my eye doctor it is time for cataract surgery. I have an evaluation scheduled for November 1st. I have sent...

Hello Anyone dealing with MDS and how long and how are you doing?

For the last 6 months I've been going to a Hematologist to determine the cause of my low WBC, low platelet count and low B12...

I have been diagnosed with MDS. It started with weight loss about 4 years ago and no other symptoms. Eventually, I gained some of the...

I am an eighty-five year old man on dialysis with MDS-1. Overall, I feel fine, but recently I am starting to feel lifeless, no energy,...

Nothing working....Procrit, Lenalidimide, or Vidaza...heard about Elritercept in Europe, and Lospatercept and Imetelstat. What does anyone know?

First off, I want to thank Mayo Clinic and their Team of Doctors for treating my father who was diagnosed about 27 months ago with...

Just got my platelet count for this month and it has dropped to 64000, I am really worried, I’ve also lost weight and feeling cold...

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...

Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

My husband has been taking retacrit along with a growth hormone for his white blood cells. Any side effects we should be aware of?

I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?

For 13 years, doctors and universities thought I had WIAHA. After a recent biopsy, it turns our I have MDS with a mutation. The mutation...

Hi , Thankyou for allowing me to join. My husband aged 75 was diagnosed with high risk MDS in April 2025 , and started inquovy...

My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...