Blood Cancers & Disorders Support Group

Age 70, diagnosed with MDS Extended. Had NHL 2006 chemo and in 2008 chemo then auto transplant and good to go until Thanksgiving 2024 low...

My MDS del 5q has deteriorated over the last few months. I've had one transfusion (Hb was 74) and am about to have another. I'll...

My husband has lower risk MDS (SF3B1 mutation) MPN RS T . He has had chronic anemia that has been monitored for over a couple...

Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.

Mom is 87, newly diagnosed MDS… initially she agreed to Vidaza but now she is looking for first hand information on its side effects.. She...

I have been diagnosed with MDS-CMML-1 and am experiencing bad Pruritus (itching) in the mornings/evenings and after I shower. Does anyone have the same symptoms...

Has anyone with MDS experienced swollen and sometimes painful hands. Seems to be random and not connected to any specific activity. If you have what...

I am a 76 year old male who was recently diagnosed with Myelodysplastic syndrome, ringed sidero blasts, multilineage dysplasia (MDS-RS-MLD). Although at this point, it...

Anyone dealing with these?

After 6 months of treatment with Vidaza it appears that according to my doctor I may be experiencing a Paradox Effect. This effect is shown...

Hello everyone I have been told I have MDS5q Low risk, I have blood work done every 2 weeks.All they want to do is out...

Husband (61 years old) just diagnosed with high risk MDS, and he has had Long Covid for 5 years (one of the first to get...

is there a natural alternative that has shown success in promoting more red blood cells. Currently I am receiving shots of Vidaza but not helping...

I have been diagnosed with MDS and bone marrow transplant is not a option. What are some other treatment options?

I have been diagnosed and under treatment for MDS. Whag are the treatments for MDS?

I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...

My 67 yr old sister has been in the hospital since June 3rd and I have to make a decision for her. She was diagnosed...

Can anything help ongoing fatigue from MDS?

Wen do you need to start treatments for this disorder an wat best treatments are there

I would like to share information with others. Thanks