Blood Cancers & Disorders Support Group

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...

I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...

Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...

Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...

Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...

42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...

Just told that I have a Jak 2 mutation. Anyone else been thru this ?

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?

I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...

I am ET/Jak2 — 72 years oldDiagnosed July 2024HU 500mg dailyAre the following symptoms from the HU or ET itself:Lightheaded (feel a bit unbalanced/dizzyBrain fogItchyI...

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs Have ET (Jak2) diagnosed August 2022...

Diagnosed with PV with JAK2 mutation In November. Did not do well on Hydroxyurea. I just started BESREMi at 100mg every 2 weeks. I have...

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...