Blood Cancers & Disorders Support Group

I found a research study that connected the ET Jak2 with endometrial cancer, and wonder if that happened to you? I was diagnosed with endometrial...

Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...

Hi All,Appreciate guidance from this group as I am panicking a bit.JAK2 V617F mutation was deleted in routine blood test. AK2 V617F Percent Mutated Alleles...

Hello, I am newly diagnosed (2 weeks) with Essential Thrombocythemia JAK2 and have been on 1000mg a day of Hydroxyurea for 2 weeks. I have...

I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...

I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of...

Any one managing Thrombocythemia Jak2 and hemochromatosis (cys282Tyr)? I’m new to both. I started Hydrea a few weeks ago. Any insights to share? Thanks!

I was diagnosed with PV JAK2 a year ago and have taken HU for six weeks, then had bone marrow biopsy that shows TET2 and...

Hello. Has anyone with JAK2/PV who’s on 1000mg HU and Low Dose Aspirin daily, had an epidural or back surgery? What was your experience and...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...

I have been on Hydroxyurea for 1 1/2. I’m on 500 once a day. My platelets are tracking at 405k. I am borderline anemia. But...

Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...

I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

Hi my wife's routine blood test came back with high platelet count a few times in the past few years, every time the doctor would...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...

I was diagnosed with JAK 2 about two year ago - platelet count was around 750,000. I have been taking hydroxyrurea (500mg) daily and have...

Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...