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Public Support Group 1,108 total results
Discussions (73)
Thrombocythemia JAK2 - is it ok to have an MRI with dye?
Hello, I have thrombocythemia JAK2 mutation. I am 59 with no symptoms, taking 81mg of low-dose aspirin. I have a labral tear lt hip, and...
Interferon-alpha impact on JAK2 allele ratio?
Anyone with Polycythemia Vera (PV) or Myelofibrosis (MF) with JAK2 verified mutation, please share with me your JAK2 allele ratios while taking Interferon-Alpha (INN). I...
Prescribed Aspirin for ET with Jak2 mutation and have GERD
I am a 65 year old female newly diagnosed with ET with JAK2 mutation. My hematologist prescribed 81 mg aspirin a day. I have not...
Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?
I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....
JAK2 Mutation and enlarged spleen: What might it mean?
Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...
JAK2 Mutation, Low Iron and High Platelet count
I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...
High platelets, Jak2, ET, and pre-fib new diagnosis
Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
https://connect.mayoclinic.org/discussion/polycythaemia-ruba-vera-jak2-mutation-link-to-sleep-apnea/
I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...
I have JAK2 ET and MPN: Anyone else have these symptoms?
Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Has anyone had a total knee replacement that also has JAK2?
I was diagnosed with JAK 2 about two year ago - platelet count was around 750,000. I have been taking hydroxyrurea (500mg) daily and have...
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...
Jak 2 mutations
Just told that I have a Jak 2 mutation. Anyone else been thru this ?
Jak 2 Positive with Elevated Platelets: What symptoms do you have?
42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
A link between Rheumatoid Arthritis and Essential Thrombocythemia?
Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?
Polycythemia vera (PV): Does altitude matter?
I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Polycythemia Vera: HFE and IFT140 Genes
While I know JAK2, TET2, CALR, etc. are the most common genetic mutations in PV, does anyone else have it with the HFE gene (with...
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