Blood Cancers & Disorders Support Group

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...

Hello everyone, I was diagnosed with MGUS after a routine physical, and my doctor made it sound like it wasn't that serious, but my (favorite)...

Three weeks ago I had the shingles. I had a Chickenpox over 50 years ago. Is there any reason to worry when that virus became...

Hi. I’ve been told that my MGUS case is rare, and I’ve been undergoing chemotherapy treatments for for about 8 months after failed steroid treatments....

Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...

Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...

I’ve had 10 broken bones since Christmas. Some are with no falls to explain them, and I’ve been diagnosed with severe osteoporosis as a result....

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda, M proteins came up very high. He had a...

My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...

I started having health issues when I was a very young gal around 4. I was told at a plasma center when I was 18...

I'm a teacher for special education in two small elementary schools (ages 7-13). I've 12 years left to retired. Asthma, Bronchodilation and MGUS cause susceptibility...

Is anyone here using CURCUMIN/TUMERIC via any of the following with the goal of lowering MGUS' progression: 1. Official clinical trial? 2. Taking it via...

Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...

I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...

Wondering what dose and brand of curcumin others are using, as well as any specific contraindications and side effects? Thank you!

Hi, I am 25M, diagnosed with MGUS at age 22 in Dec 2021. Since then my FLC ratio (IGG Lambda K/L = 0.49) has gone...

Was diagnosed with MGUS 2 yrs ago after surgery on my back, I am being followed by oncologist. I suffer from fatigue and bruising. For...

Not really sure if its related, but I get super wiped out after a couple hours of chores, or just shopping, my entire body aches...

I am 25 M, and I diagnosed with IGG Lambda MGUS 2 years ago. My protein when diagnosed was 0.4, but now it measures 0.7....