Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
1,314 total results
Discussion
Wooziness and MGUS
Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I...
Last active: Sep 6, 2023
Discussion
MGUS and Shingles
Three weeks ago I had the shingles. I had a Chickenpox over 50 years ago. Is there any reason to worry when that virus became...
Last active: Mar 21 8:06am
Discussion
MGUS and Chemotherapy
Hi. I’ve been told that my MGUS case is rare, and I’ve been undergoing chemotherapy treatments for for about 8 months after failed steroid treatments....
Last active: Sep 29, 2023
Discussion
MGUS & Thrombocytopenia
Hey I have been sick for quite sometime having bone pain and low iron levels and I had bleeding in my stomach previously they said...
Last active: Dec 18, 2023
Discussion
MGUS & Rash
Hi everyone, I got diagnosed with MGUS last month with my GP and still waiting to see Hematologist. I have also got some rash in...
Last active: Apr 2 6:51am
Discussion
MGUS + pulmonary sarcoidosis
I was diagnosed with MGUS in Dec. 2021 and pulmonary sarcoidosis in May 2022. Both are being monitored-MGUS blood test every 6 months. Sarcoidosis baseline...
Last active: Jun 27, 2023
Discussion
Diagnosed with MGUS/Amyloidosis
My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda, M proteins came up very high. He had a...
Last active: Jul 20, 2023
Discussion
MGUS with bone pain?
My GP was concerned that I kept testing positive for kappa light chain, so he sent me to see an oncologist who said it was...
Last active: Feb 10 12:28pm
Discussion
Waldenstrom's, CLL or MGUS?
Hi--I was diagnosed with WM in the summer of 2023 by a hematologist. My PCP, however, thought it might be CLL. A second opinion (online)...
Last active: Mar 5 11:44am
Discussion
I have MGUS
I started having health issues when I was a very young gal around 4. I was told at a plasma center when I was 18...
Last active: Apr 14, 2023