Wooziness and MGUS

Posted by harley23 @harley23, Apr 4, 2023

Have any of you MGUS patients experienced wooziness? It isn't vertigo or a spinning feeling. It feels like I'm drunk, and I stagger when I walk. It doesn't occur every day, but it can be debilitating to the point that I won't drive. My ENT has ruled out vertigo from an ear issue, so my hematologist NP has referred me for a neurological workup. She doesn't think it's from MGUS. I also noticed it's worse if I take Turmeric or ibuprofen. I've stopped turmeric but take ibuprofen still for pain.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Ibuprofen is a blood thinner. I was advised by my hematologist to only take acetaminophen and stay away from ibuprofen and Aleve. Hope this helps.

REPLY
@cjen000

Ibuprofen is a blood thinner. I was advised by my hematologist to only take acetaminophen and stay away from ibuprofen and Aleve. Hope this helps.

Jump to this post

Thank you for the information. I knew ibuprofen has blood thinning properties, but I didn't know to avoid taking it. It really doesn't help relieve my pain anyway, but neither do Aleve nor acetaminophen. Again, thank you for the info. I will stop the ibuprofen.

REPLY

I also have wooziness regularly. I’ve had a complete cardiology work up but it was fine. We don’t really know the cause. I’ve had the problem off and on for years before my MGUS diagnosis.

REPLY

I also have the woozines
Ever day. It helps me to get out and walk. I also have leg pain in both legs.
Not sure if mgus can cause this. The woozines got worse when I come down with covet, so did the drunk feeling

REPLY
@jewelina

I also have wooziness regularly. I’ve had a complete cardiology work up but it was fine. We don’t really know the cause. I’ve had the problem off and on for years before my MGUS diagnosis.

Jump to this post

Thank you. My wooziness is getting worse. I guess I'll just have to learn to live with it. It goes away completely when I lie down! I can't get in to see my ENT until the end of August. It is NOT vertigo. I've had that, and it responds to the Epley maneuver which makes my woozies worse. My cardiology workup was also fine. I had an MRI/MRA of my brain which found a small aneurysm in my left internal carotid artery. I have a brain angiogram scheduled in July to follow up on that. Saw an endocrinologist who ordered a plethora of bloodwork and an ultrasound of my thyroid. That follow up appointment is June 14th. My stamina is low. If I push myself physically, I seem to be down the following day.

REPLY
@billyharvey

I also have the woozines
Ever day. It helps me to get out and walk. I also have leg pain in both legs.
Not sure if mgus can cause this. The woozines got worse when I come down with covet, so did the drunk feeling

Jump to this post

Thank you for that input. My hematologist NP said she didn't think the wooziness was from MGUS, but I wonder now. I stagger sometimes, so am afraid to get out and walk. I just bought an exercise bike so I can safely exercise in my living room.

REPLY

Hi,

Hello, My neurologist recently diagnosed me with MGUS. Also, he previously determined I have small fiber neuropathy and cervical spondylosis with atypical symptoms such as blurred vision, headache, nausea, palpitation, tinnitus, vertigo, and hypomnesia. At what point should I consider surgery to counter my cervical issues from advancing?

Also, I have bone-related pain in my pelvic area, legs, and shoulders; mostly at night and my blood work reflects I'm anemic. As such, it's difficult for me to determine what issue(s) may be advancing and causing irreversible damage. Any feedback on a recommended course(s) of action is appreciated.

REPLY

I came here today to see if anyone else has this. I too have wooziness. I feel like I’m drunk. I was worried that I was gonna fall and then it happened today. My oncologist said he isn’t sure so he referred me to other specialists. it could be from Mgus but it could be something else. I do know at one point before my dads Mgus turned into multiple myeloma (he passed from it) he was also having the same symptoms. My pcp says there are no symptoms with Mgus but tests me cause of my inflammation, bone and joint pain. Due to my Dad and his sister passing from multiple myeloma. That’s how they found my igg kappa Mgus. I did find this tho through my hours of research . MGUS have problems with their balance, or numbness or tingling in their hands and feet. Not much but something hope it helps.

REPLY
@debby090

I came here today to see if anyone else has this. I too have wooziness. I feel like I’m drunk. I was worried that I was gonna fall and then it happened today. My oncologist said he isn’t sure so he referred me to other specialists. it could be from Mgus but it could be something else. I do know at one point before my dads Mgus turned into multiple myeloma (he passed from it) he was also having the same symptoms. My pcp says there are no symptoms with Mgus but tests me cause of my inflammation, bone and joint pain. Due to my Dad and his sister passing from multiple myeloma. That’s how they found my igg kappa Mgus. I did find this tho through my hours of research . MGUS have problems with their balance, or numbness or tingling in their hands and feet. Not much but something hope it helps.

Jump to this post

Hi Debby. I too have had this feeling of drunkenness when I sit or stand. It started about 16 months ago and has progressively worsened. It goes away when I lie down. It is not vertigo. I finally saw my ENT and it looks like my symptoms are from a condition related to aging (I am 76) called Presbystasis. It is common and incurable but treatable. Treatment consists of balance training mostly so I am waiting for a physical therapy referral. I highly recommend you see an ear-nose-throat (ENT) doctor. After 16 months of seeing a plethora of specialists, I finally have an answer. I keep a positive attitude and look on the bright side. The blessing has been that in my search for an answer, a small aneurysm was discovered in my brain that I have had treated with a type of "stent" that will cut off the aneurysm blood supply and make it go away! Praise God! Keep us posted if you like on your journey. I hope this helps.

REPLY
@debby090

I came here today to see if anyone else has this. I too have wooziness. I feel like I’m drunk. I was worried that I was gonna fall and then it happened today. My oncologist said he isn’t sure so he referred me to other specialists. it could be from Mgus but it could be something else. I do know at one point before my dads Mgus turned into multiple myeloma (he passed from it) he was also having the same symptoms. My pcp says there are no symptoms with Mgus but tests me cause of my inflammation, bone and joint pain. Due to my Dad and his sister passing from multiple myeloma. That’s how they found my igg kappa Mgus. I did find this tho through my hours of research . MGUS have problems with their balance, or numbness or tingling in their hands and feet. Not much but something hope it helps.

Jump to this post

MGUS patients frequently complain about neuropathy, myself included. Evidently it confuses us about the relationship of the feet to the floor which can result in falls.
I went to orthopedic and podiatry docs who were not helpful. Nagged my PCP to appoint me with a neurologist, who seem to be in great demand. My PCP and specialty docs are all at a large medical center. Convenient, but popular and I wait for appointments. Waiting is not my forte.
The suggestion to see an ENT specialist is good. I am otherwise symptomatic of neuropathy, so imbalance related to inner ear issues was one of my rule outs.
Good for you for getting to the source of your symptoms. Also might consider a neurology consult due to “tingling.”
Patty

REPLY
Please sign in or register to post a reply.