Blood Cancers & Disorders Support Group

@zeedee1, see these related discussions: - Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?https://connect.mayoclinic.org/discussion/waldrenstrom-macroglobulinemia/ - How are...

https://connect.mayoclinic.org/comment/1577592/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: May 18 2:20pm

@carrnv42, welcome. I moved your question about zanubrutinib (Brukinsa) to this already existing discussion: - Waldenström...

https://connect.mayoclinic.org/comment/1451014/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

@kabue9, I moved your question to the Blood Cancers & Disorders support group to this discussion:...

https://connect.mayoclinic.org/comment/1278128/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Hi @dorioeo1964, it sounds like you are in the process of being diagnosed, possibly with a...

https://connect.mayoclinic.org/comment/1602524/

Discussion: Blood cancer for Dori

Support Group: Blood Cancers & Disorders

Posted: Jun 20 3:07pm

To geo84: You could be describing my experience, too, with the low energy, regular nap time,...

https://connect.mayoclinic.org/comment/1612996/

Discussion: With Myelofibrosis I have good days and bad days - is this normal?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

will side effects from venclexta ever go away… night sweats, nausea, dizzy.. zofran helps nausea, tramadoil...

https://connect.mayoclinic.org/comment/1600842/

Discussion: Adding Venclexta to treatment for Waldenstrom: What to expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 9:53am

@mackenzies, welcome. You will find many discussions related to Waldenstrom Macroglobulinemia here: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Waldenstrom&index=discussions You may wish...

https://connect.mayoclinic.org/comment/1601111/

Discussion: Anyone with Waldenstrom Macroglobulinemia who is biclonal?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 3:09pm

@kjoed53 I've been diagnosed w Waldenstrom Macroglobulinemia for watch & wait w followup hema/onco visit June...

https://connect.mayoclinic.org/comment/1571966/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 11 8:38am

Hi @chicago2025 Welcome to Mayo Connect. Thanks for jumping into the conversation of possible treatment options...

https://connect.mayoclinic.org/comment/1572821/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 12 9:02am

anyone on venclexta? awful side effects now for a month on it. dizzy? weak, hot sweats...

https://connect.mayoclinic.org/comment/1577328/

Discussion: Adding Venclexta to treatment for Waldenstrom: What to expect?

Support Group: Blood Cancers & Disorders

Posted: May 18 9:28am

@barbarian1 That does hit one hard. I hope you have a good support network, and there...

https://connect.mayoclinic.org/comment/1571333/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 10 11:48am

No he stated thru portal he is confident it's Waldenstrom Macroglobulinemia. Have appt Frid. Ty.

https://connect.mayoclinic.org/comment/1589483/

Discussion: Is it Waldenstrom Macroglobulinemia?

Support Group: Blood Cancers & Disorders

Posted: Jun 3 6:12am

Get a Bone Marrow Biopsy done w Local AND the Twilight Sedation in hospital daycare. Don't...

https://connect.mayoclinic.org/comment/1571309/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 10 11:28am

Attended my first IWMF educational forum as a virtual attendee. Very helpful since I have been...

https://connect.mayoclinic.org/comment/1578963/

Discussion: Is it Waldenstrom Macroglobulinemia?

Support Group: Blood Cancers & Disorders

Posted: May 20 9:18am

Since everyone responds differently, I highly recommend joining the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) - either...

https://connect.mayoclinic.org/comment/1074361/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave...

https://connect.mayoclinic.org/comment/1042904/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

@careysuzi Welcome to Mayo Clinic Connect! To get more information about your new diagnosis, I recommend...

https://connect.mayoclinic.org/comment/996792/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

I am an active 75 year old and I was diagnosed with anemia, than MGUS 6...

https://connect.mayoclinic.org/comment/996268/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024