With Myelofibrosis I have good days and bad days - is this normal?

Posted by geo84 @geo84, 9 hours ago

I am 82 years old and have myelofibrosis. Some days I feel okay, but on other days I am wiped out, lethargic, low energy, wobbly, and generally feel unstable and weak. So far, the good days still outnumber the bad days. Do other people with myelofibrosis experience these swings in how they feel?

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Dear @geo84

Yes - for me it seems every afternoon I need a nap and I typically go to bed between 8 pm and 9 pm. According to my research hemoglobin is lower in the afternoon/evening. This lower hemoglobin causes fatigue. Best wishes

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