Blood Cancers & Disorders Support Group

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Comments (233)

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

Thank you ginpene. That's what I thought too, as well as for waldromstrom Macroglobulinemia. Again, thanks.

https://connect.mayoclinic.org/comment/284531/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2019

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

I was diagnosed with MGUS in 2022. I had a M spike in my bloodwork. I...

https://connect.mayoclinic.org/comment/1159810/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Your questions are 2 I have never asked the oncologist about so I don't really know...

https://connect.mayoclinic.org/comment/1146313/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

I should have been a bit more specific in my answer about the powdered turmeric /...

https://connect.mayoclinic.org/comment/1125171/

Discussion: Finding the best Curcumin

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2024

When my oncologist was doing tests to determine Waldenstroms, she said I needed a BMB and...

https://connect.mayoclinic.org/comment/1048617/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

What does your oncologist suggest as far as getting the genetic testing done to confirm WM?...

https://connect.mayoclinic.org/comment/990739/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Welcome to Connect, @careysuzi. It’s great to have you here in the Waldenström's Macroglobulinemia support group...

https://connect.mayoclinic.org/comment/989959/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

@emma405, I moved your question to this existing discussion: - With Waldenstrom, what side effects did...

https://connect.mayoclinic.org/comment/941751/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Mike, I made the assumption you were on Medicare like I am. All treatments I received...

https://connect.mayoclinic.org/comment/910703/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

I have both and each problem can have similar side effects. I’m not a Dr this...

https://connect.mayoclinic.org/comment/910221/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Hi, my name is Patrick and I was just diagnosed with Waldenström macroglobulinemia last week after...

https://connect.mayoclinic.org/comment/872026/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

i was diagnose with waldenstrom 2 years and 2 months my levels are increasing and know...

https://connect.mayoclinic.org/comment/870531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Hello @bobkat694 Welcome to Mayo Connect. While you’re waiting to see if any other members can...

https://connect.mayoclinic.org/comment/866469/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

I was diagnosed with Waldenstroms a year ago. Is shortness of breath a common symptom? It...

https://connect.mayoclinic.org/comment/860337/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2023

I am so sorry about your daughter’s rare WM diagnosis. May I ask if she gad...

https://connect.mayoclinic.org/comment/855382/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

The I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) if having an educational Forum, both in person and virtually,...

https://connect.mayoclinic.org/comment/843970/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023