Blood Cancers & Disorders Support Group

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Comments (254)

Hi @mariko572, you may wish to connect with other members living with Waldenstrom’s in this discussions:...

https://connect.mayoclinic.org/comment/790047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I'm sorry to hear of your diagnosis. Though I'm still watching and waiting, I find the...

https://connect.mayoclinic.org/comment/787689/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact...

https://connect.mayoclinic.org/comment/776531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Antibodies are large proteins of the immune system that neutralize intruders, such as bacteria, viruses, fungi,...

https://connect.mayoclinic.org/comment/715892/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...

https://connect.mayoclinic.org/comment/691691/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi Marianna, welcome. You're so wise to reach out to other patients and caregivers familiar with...

https://connect.mayoclinic.org/comment/691686/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

@puffwithfluff, I'm glad you've connected with @ejrquast. I hope the two of you will continue to...

https://connect.mayoclinic.org/comment/663405/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

Thank you ginpene. That's what I thought too, as well as for waldromstrom Macroglobulinemia. Again, thanks.

https://connect.mayoclinic.org/comment/284531/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2019

Hello @janemichele, welcome to Connect. It seems as though you have already done your research, but...

https://connect.mayoclinic.org/comment/284520/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2019

I, too, was diagnosed with Waldenstrom Macroglobulinemia in June, 2015. It's scary. It never goes away....

https://connect.mayoclinic.org/comment/169959/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I would say that keeping your immune system well. Eating healthy, greens, no meat, no bacon....

https://connect.mayoclinic.org/comment/169962/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I, too, was diagnosed with WM in 2015. I am stable so there are no treatments....

https://connect.mayoclinic.org/comment/113918/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2017

Hi @ewash55, I went to an annual physical in Dec23 and had a high WBC count(50k+)....

https://connect.mayoclinic.org/comment/1455066/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Hello Puddy @cookegmailcom, I'm glad to see you have connected with @ejrquast. Here is the link...

https://connect.mayoclinic.org/comment/1383202/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

would you be kind enough to provide the link to I.W.M.F. please. I have Waldrenstroms.

https://connect.mayoclinic.org/comment/1383101/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025