Blood Cancers & Disorders Support Group

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Comments (254)

i was diagnose with waldenstrom 2 years and 2 months my levels are increasing and know...

https://connect.mayoclinic.org/comment/870531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Hello @bobkat694 Welcome to Mayo Connect. While you’re waiting to see if any other members can...

https://connect.mayoclinic.org/comment/866469/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

I was diagnosed with Waldenstroms a year ago. Is shortness of breath a common symptom? It...

https://connect.mayoclinic.org/comment/860337/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2023

I am so sorry about your daughter’s rare WM diagnosis. May I ask if she gad...

https://connect.mayoclinic.org/comment/855382/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

The I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) if having an educational Forum, both in person and virtually,...

https://connect.mayoclinic.org/comment/843970/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

Thank you for reaching out for support. WM is a very rare blood cancer. While it...

https://connect.mayoclinic.org/comment/812866/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I too have shortness of breath which is apparently attributable to low hemoglobin (I have Waldenstrom's...

https://connect.mayoclinic.org/comment/791282/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

Hi @mariko572, you may wish to connect with other members living with Waldenstrom’s in this discussions:...

https://connect.mayoclinic.org/comment/790047/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I'm sorry to hear of your diagnosis. Though I'm still watching and waiting, I find the...

https://connect.mayoclinic.org/comment/787689/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact...

https://connect.mayoclinic.org/comment/776531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Antibodies are large proteins of the immune system that neutralize intruders, such as bacteria, viruses, fungi,...

https://connect.mayoclinic.org/comment/715892/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...

https://connect.mayoclinic.org/comment/691691/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi Marianna, welcome. You're so wise to reach out to other patients and caregivers familiar with...

https://connect.mayoclinic.org/comment/691686/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

@puffwithfluff, I'm glad you've connected with @ejrquast. I hope the two of you will continue to...

https://connect.mayoclinic.org/comment/663405/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021