Blood Cancers & Disorders Support Group

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Comments (272)

I am having tremors in the hands, arms and legs which leads to falling down. I...

https://connect.mayoclinic.org/comment/104728/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2018

Hi. I have been using a Philips System One CPAP for about 12 years and just...

https://connect.mayoclinic.org/comment/660227/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of...

https://connect.mayoclinic.org/comment/88329/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2019

But - will ultra sound show if I have the amyloid protein in any heart tissue...

https://connect.mayoclinic.org/comment/1117279/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I was just diagnosed with systemic amyloidosis al I start chemo 4-8-24 am scared. They said...

https://connect.mayoclinic.org/comment/1042422/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

@dazlin Thanks, dazzle. I think what is happening is that my systemic amyloidosis has invaded either...

https://connect.mayoclinic.org/comment/106680/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

Welcome to Connect @3419harrison, AL Amyloidosis is a disease which occurs when a protein called amyloid...

https://connect.mayoclinic.org/comment/1112342/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live...

https://connect.mayoclinic.org/comment/902503/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2023

If it is SMM then likely waiting to see if it morphs to MM. I don't...

https://connect.mayoclinic.org/comment/1151734/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

This scan can be used to find out if you have a rare disease called cardiac...

https://connect.mayoclinic.org/comment/754823/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

@kanaazpereira Thank you for asking me to join in. I was diagnosed with a very rare...

https://connect.mayoclinic.org/comment/88316/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

@lisal64 .. Actually, yours seems to be a rather typical story. The part many folks don't...

https://connect.mayoclinic.org/comment/661954/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2021

I think I found the Connection for you!! It’s an older conversation and I’m not sure...

https://connect.mayoclinic.org/comment/874415/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

I was diagnosed with MGUS December 2024- this started in December 2023. My lab results were...

https://connect.mayoclinic.org/comment/1238465/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Feb 16 3:23pm

I was treated for amyloidosis in 2007 at Mayo Clinic Rochester. I was there with a...

https://connect.mayoclinic.org/comment/689030/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2022

I had no symptoms. Amyloid was an incidental finding in a polyp removed during a colonoscopy....

https://connect.mayoclinic.org/comment/824980/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Hi Nancy, Yes, you are replying right and using the forum as it is intended. I'm...

https://connect.mayoclinic.org/comment/971450/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2023

I was just dx a week ago through BMB and fat aspirate, but they have elected...

https://connect.mayoclinic.org/comment/104692/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2017