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Macular amyloidosis
Hi everyone, Can you please tell me how to manage macular amyloidosis.. The pigmentation is increasing slowly and i am super stressed out.. Please help
Last active: Jun 19, 2023
Discussion
Could this be Amyloidosis?
I’m 57 years old and my health started to become problematic in my mid 40’s, but 9 years ago, things really picked up pace. I...
Last active: Jan 10 12:11pm
Discussion
Waldenstroms and amyloidosis
Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?
Last active: Dec 21, 2024
Discussion
Looking for guidance...possible amyloidosis?
Hi everyone, I’m honestly posting because I’m scared and running out of patience with how slow this has been. For about five years I’ve had...
Last active: Dec 24, 2025
Discussion
AL Amyloidosis types and Neuropathy
Hi everyone. This is my first time posting. My father has recently been diagnosed with AL Amyloidosis, and I have a lot of barely-formed questions...
Last active: Oct 21, 2025
Discussion
Amyloidosis and low SpO2
I have recently been diagnosed with Amyloidosis, although I don’t know yet what type I have. They sent my biopsy sample to the Mayo Clinic...
Last active: May 11, 2025
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Last active: Jun 3, 2025
Discussion
Factor X Deficiency with Amyloidosis
I was diagnosed 3 years ago with AL Amyloidosis, along with Factor X deficiency. I was told the Factor X deficiency was very, very rare...
Last active: Jun 19, 2025
Discussion
AL Amyloidosis maybe?
Hello. I need help/advice...36 M For the last 6 months I am having these health issues. To be more specific, I think it all started...
Last active: May 17, 2025
Discussion
Husband diagnosed with smothering myeloma and AI amyloidosis
My husband was diagnosed with smothering myeloma and Al amoloyd in his heart. He served 20 years in the military and now this
Last active: Jul 13, 2022