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Blood Cancers & Disorders Support Group

Public Support Group
302 total results
Discussion
Macular amyloidosis
Hi everyone, Can you please tell me how to manage macular amyloidosis.. The pigmentation is increasing slowly and i am super stressed out.. Please help
Last active: Jun 19, 2023
Discussion
Amyloidosis and low SpO2
I have recently been diagnosed with Amyloidosis, although I don’t know yet what type I have. They sent my biopsy sample to the Mayo Clinic...
Last active: May 11 7:35pm
Discussion
Waldenstroms and amyloidosis
Diagnosed with the Waldenstroms a year ago, just today with amyloidosis. Will start treatment next week. Anyone have these or know anything?
Last active: Dec 21, 2024
Discussion
Factor X Deficiency with Amyloidosis
I was diagnosed 3 years ago with AL Amyloidosis, along with Factor X deficiency. I was told the Factor X deficiency was very, very rare...
Last active: Jun 19 8:36pm
Discussion
AL Amyloidosis maybe?
Hello. I need help/advice...36 M For the last 6 months I am having these health issues. To be more specific, I think it all started...
Last active: May 17 3:16pm
Discussion
Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...
Last active: Jun 3 9:23am
Discussion
Husband diagnosed with smothering myeloma and AI amyloidosis
My husband was diagnosed with smothering myeloma and Al amoloyd in his heart. He served 20 years in the military and now this
Last active: Jul 13, 2022
Discussion
Recently diagnosed with AL Amyloidosis: Any advice?
My mom was recently diagnosed w AL Amyloidosis, our local hospital missed some important tests . We just had our first trip to Mayo. I...
Last active: May 18, 2024
Discussion
What is the next step for amyloidosis - unknown type?
Recent carpal tunnel release found amyloidosis but insufficient tissue for biopsy. I live near Des Moines and she wants to send me to a cardiologist....
Last active: Jun 1 8:47am
Discussion
Current diagnosis is Amyloidosis and multiple myeloma
I was diagnosed with myeloma quite by chance at a routine neuro appointment a year ago. My current diagnosis is Amyloidosis and multiple myeloma I...
Last active: Jul 14, 2018