Blood Cancers & Disorders Support Group

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Comments (236)

Wow, Lori! Thank you for your wonderful message. It is very comforting to talk with knowledgeable...

https://connect.mayoclinic.org/comment/1327847/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Roywalton, Thank you for your note. Yes, my care team is looking for a match. Good...

https://connect.mayoclinic.org/comment/1315727/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 29, 2025

Hi @jps01, from my experience with leukemia and hundreds of blood tests over the past 4...

https://connect.mayoclinic.org/comment/928445/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi Larry, Glad you are doing well on Jakafi. I was on it from 12/22-8/23 in...

https://connect.mayoclinic.org/comment/1013874/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

My Neutrophil count was only half of the previous months count at 0.17. The doctor has...

https://connect.mayoclinic.org/comment/1230666/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

@loribmt No, I’ve never tried acupuncture. I do have osteoarthritis (from wear & tear plus age)....

https://connect.mayoclinic.org/comment/1550555/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 14 3:21pm

Please update me when you get your results..hope you have great results..I have had to increase...

https://connect.mayoclinic.org/comment/1439637/

Discussion: Anyone increase mutations during chemo

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2025

I have MDS and I went to Dr Mariano Garcia at MD Anderson in Houston. He...

https://connect.mayoclinic.org/comment/665480/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

Hi @terdor. Well, that’s some pretty encouraging news about your husband’s PSA results! I’m sure that...

https://connect.mayoclinic.org/comment/1338837/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2025

Hi @dindazz It sounds like your mom is at a crossroads in her cancer treatments. Even...

https://connect.mayoclinic.org/comment/1400199/

Discussion: Vidaza, keep going or stop

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

That is wonderful news! I also had the “two V’s” (Vidaza and Venetoclax), but after I...

https://connect.mayoclinic.org/comment/917597/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

Good morning, @jenn2458 I’m so sorry your dad isn’t doing well with his treatments for MDS....

https://connect.mayoclinic.org/comment/1239685/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2025

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I've had exp with vidaza....and low platelets. Are u aware that wbc and other blood #...

https://connect.mayoclinic.org/comment/1254847/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

Thank you for asking. He is getting vidaza , five days in then three weeks off....

https://connect.mayoclinic.org/comment/999011/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2024

Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like...

https://connect.mayoclinic.org/comment/1155582/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

I am on my 28 cycle with Vidaza. All my labs counts were low including platelets...

https://connect.mayoclinic.org/comment/1098690/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

My husband just finished his first round of Vidaza, 7 days on and in 1 month...

https://connect.mayoclinic.org/comment/1273002/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Good morning, @dax1million. I’ve said this before to other members, that it’s a privilege to be...

https://connect.mayoclinic.org/comment/1253957/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2025

Thank you , your post was a Godsend. After a down day yesterday with my husband’s...

https://connect.mayoclinic.org/comment/1252374/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

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