Blood Cancers & Disorders: Discussions | Page 6

After visiting the hematologist at Fred Hutch in Seattle, she sent me a letter informing me...

https://connect.mayoclinic.org/comment/1156023/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

Thank you so much for your positive comments on Ojjaara. For two years I have not...

https://connect.mayoclinic.org/comment/1167877/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

Hi @eferret. Sounds like you have a good team behind you with your local hematologist and...

https://connect.mayoclinic.org/comment/1156861/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

NAC sounds interesting. My pains are not from myelofibrosis. I don't have bone pain these days....

https://connect.mayoclinic.org/comment/132662/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Have you also been given Allopurinol to prevent gout and cramps - stops the build up...

https://connect.mayoclinic.org/comment/943396/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

To determine if I still had polycythemia vera or myelofibrosis a bone marrow biopsy was done...

https://connect.mayoclinic.org/comment/876362/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

My husband was diagnosed with primary myelofibrosis 1 month ago. The doctor hasn’t stated him on...

https://connect.mayoclinic.org/comment/1249038/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:42pm

Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was...

https://connect.mayoclinic.org/comment/50507/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Wow. I'm terrible at this posting stuff I guess. I just saw that you had asked...

https://connect.mayoclinic.org/comment/1039752/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

This is the first discussion I have seen concerning myelofibrosis. I was diagnosed with Primary myelofibrosis...

https://connect.mayoclinic.org/comment/1209703/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 9:10am

Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....

https://connect.mayoclinic.org/comment/132609/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31 4:16pm

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:25am

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...

https://connect.mayoclinic.org/comment/1194113/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Bonnie, You will be amazed at how it will all come together with planning. Having such...

https://connect.mayoclinic.org/comment/1324245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10 10:56am

Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...

https://connect.mayoclinic.org/comment/1081066/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

I’m a 83-year-old female, diagnosed with lymphoma and myelofibrosis (JAK2 mutation) in June of 2024. I’ve...

https://connect.mayoclinic.org/comment/1252690/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 3:11pm

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 10:38am

Blood Cancers & Disorders Support Group