Blood Cancers & Disorders Support Group

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Comments (242)

You might be interested in the MPN Research Foundation site. It notes that women are 1.5...

https://connect.mayoclinic.org/comment/1047757/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

I was diagnosed with essential thrombocythemia in January, and have been taking hydroxyurea since then. Between...

https://connect.mayoclinic.org/comment/729701/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Basically, all of your symptoms of anemia and the ET may related. You’re not getting the...

https://connect.mayoclinic.org/comment/808454/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hello @esperanzam, welcome to Connect. You may noticed I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/203946/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Thanks for your post. I am now 75 and found Essential Thrombocythemia as my first chronic...

https://connect.mayoclinic.org/comment/776264/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Thanks for the info. I will be more diligent about my annual eye exam, as the...

https://connect.mayoclinic.org/comment/1080017/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Welcome to Connect, @platlite7. This is a bit of a conundrum for you with the conflict...

https://connect.mayoclinic.org/comment/1096235/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Hi @kapow. While you’re waiting for other members taking hydroxy to Essential thrombocythemia can also impact...

https://connect.mayoclinic.org/comment/1026013/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Welcome back @esperanzam. You'll notice that I moved your message to this existing discussion about Essential...

https://connect.mayoclinic.org/comment/146321/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Hi @shree, I know you are concerned that most of the discussions you’ve found on ET...

https://connect.mayoclinic.org/comment/1269512/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29 3:18pm

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

ET, cancer or not? I realize doctors disagree. But be aware that if you are applying...

https://connect.mayoclinic.org/comment/1048393/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

Hi @kroolivera. You bring up a valid concern regarding your diagnosis and childbearing. As it just...

https://connect.mayoclinic.org/comment/203942/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2018

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Hi Tessa! I was diagnosed with essential thrombocythemia in 2019 at the age of 64. My...

https://connect.mayoclinic.org/comment/1148876/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Hi, @lea123. Welcome to Mayo Connect. I’m happy you found our great community forum. I wish...

https://connect.mayoclinic.org/comment/668147/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2022

I have ET, and have tested negative for the JAC2. I've been taking Hydrea 500mg for...

https://connect.mayoclinic.org/comment/194260/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018