Blood Cancers & Disorders Support Group | Page 6

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

The standard of care by World Health Organization for essential thrombocythemia is a bone marrow biopsy...

https://connect.mayoclinic.org/comment/845709/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

After a diagnosis of Essential Thrombocythemia just before the Covid outbreak, (with Hydro treatment and fluctuating...

https://connect.mayoclinic.org/comment/781995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect...

https://connect.mayoclinic.org/comment/641119/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

Hello @lisadej1. I would like to invite @carlavan, @shenriq, @susanellis, @misty45, and @esperanzam to this discussion...

https://connect.mayoclinic.org/comment/255604/

Discussion: Chemo and liver enzymes

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Re medic alert bracelets: Now that I am in a hospital system with universal e-charts, I...

https://connect.mayoclinic.org/comment/1314630/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Hi @julmo Welcome to Mayo Connect. Thank you for sharing your story with having ET and...

https://connect.mayoclinic.org/comment/1516539/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 12:04pm

Welcome @christinele. You can choose to follow only discussions related to ET and JAK 2. Here's...

https://connect.mayoclinic.org/comment/845309/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...

https://connect.mayoclinic.org/comment/1507899/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 8:14am

@nolablance This is an interesting find! I do have Granuloma Anulare on my forearms and elbows...

https://connect.mayoclinic.org/comment/1495639/

Discussion: Please is there anyone diagnosed with chronic granulomatous disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 11:19am

Hi @milestogo Although it is more common for people over 50-ish to develop blood conditions such...

https://connect.mayoclinic.org/comment/1524561/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:16am

@tamijulien I just got back from Mayo Clinic in Phoenix where I saw wonderful hematologist oncologist...

https://connect.mayoclinic.org/comment/1550447/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 12:50pm

Issues with our eyes are scary for sure. To offer a quick (not necessarily final) answer...

https://connect.mayoclinic.org/comment/1556601/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

I am taking 500 mg Hydrea on MWF. Still a little high but hematologist doesn't seem...

https://connect.mayoclinic.org/comment/994365/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

@snacker1206 It’s my pleasure to be of help to you. This is the beauty of our...

https://connect.mayoclinic.org/comment/607970/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Most ET patients live a normal life span. My dad had it and lived to be...

https://connect.mayoclinic.org/comment/1525738/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 13 7:05am

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January,...

https://connect.mayoclinic.org/comment/826965/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023