Blood Cancers & Disorders Support Group

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Comments (253)

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January,...

https://connect.mayoclinic.org/comment/826965/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

I am taking 500 mg Hydrea on MWF. Still a little high but hematologist doesn't seem...

https://connect.mayoclinic.org/comment/994365/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

@snacker1206 It’s my pleasure to be of help to you. This is the beauty of our...

https://connect.mayoclinic.org/comment/607970/

Discussion: Delayed pain after bone marrow biopsy??

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2021

Hi, I am new to this group. My 27 yr old daughter was diagnosed with essential...

https://connect.mayoclinic.org/comment/1041175/

Discussion: Anybody else have Factor V Leiden?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Just recently diagnosed myself, at 67, and still wrapping my brain around this. Also new to...

https://connect.mayoclinic.org/comment/1260457/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 17 2:36pm

Basically, all of your symptoms of anemia and the ET may related. You’re not getting the...

https://connect.mayoclinic.org/comment/808454/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14 10:25pm

You might be interested in the MPN Research Foundation site. It notes that women are 1.5...

https://connect.mayoclinic.org/comment/1047757/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

I was diagnosed with essential thrombocythemia in January, and have been taking hydroxyurea since then. Between...

https://connect.mayoclinic.org/comment/729701/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Thanks for your post. I am now 75 and found Essential Thrombocythemia as my first chronic...

https://connect.mayoclinic.org/comment/776264/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hello @esperanzam, welcome to Connect. You may noticed I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/203946/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...

https://connect.mayoclinic.org/comment/896933/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Welcome to Connect, @platlite7. This is a bit of a conundrum for you with the conflict...

https://connect.mayoclinic.org/comment/1096235/

Discussion: Type 1 diabetes and essential thrombocythemia: Anyone have both?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Thanks for the info. I will be more diligent about my annual eye exam, as the...

https://connect.mayoclinic.org/comment/1080017/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Hi @kapow. While you’re waiting for other members taking hydroxy to Essential thrombocythemia can also impact...

https://connect.mayoclinic.org/comment/1026013/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Welcome back @esperanzam. You'll notice that I moved your message to this existing discussion about Essential...

https://connect.mayoclinic.org/comment/146321/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024