Blood Cancers & Disorders Support Group

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Comments (893)

Hi, @deezerjr. Oh dear, that sounds like such a scary situation with your poor mom. She’s...

https://connect.mayoclinic.org/comment/1522859/

Discussion: Sudden weight loss and decrease in appetite

Support Group: Blood Cancers & Disorders

Posted: Mar 8 9:58pm

Hello Kandy, Yes, I had a similar situation. My bloodwork started looking a little weird in...

https://connect.mayoclinic.org/comment/1406165/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

@cousinvinney God bless you. I have the hereditary-familial ATTR. Receiving the CLL on top of it...

https://connect.mayoclinic.org/comment/1538507/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: 2 hours ago

I’m not familiar with CLL, can you explain? Thanks!

https://connect.mayoclinic.org/comment/273082/

Discussion: CLL and Managing an Enlarged Spleen

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2019

And mention to his PCP as this may not be due to his CLL.

https://connect.mayoclinic.org/comment/1455197/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Lori, this is actually happing to my son who has CLL, also. The doctor watching hemoglobin...

https://connect.mayoclinic.org/comment/1320839/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

I was diagnosed with CLL two years ago. Although I have remained in watch and wait...

https://connect.mayoclinic.org/comment/966781/

Discussion: CLL diagnosis now having soft tissue pain

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Were you diagnosed with CLL? If so, how long ago?

https://connect.mayoclinic.org/comment/997516/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2024

Has anyone started treatment with green tea extract for CLL ?

https://connect.mayoclinic.org/comment/165760/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2018

Hi @minglu. I had a feeling your wife might be the ‘rip off the bandaid’ type...

https://connect.mayoclinic.org/comment/1269494/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

I have had CLL since 1996 and will be following the post with interest. I have...

https://connect.mayoclinic.org/comment/966101/

Discussion: CLL diagnosis now having soft tissue pain

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

Hi @mabfp3 It is always quite a shock when we get unexpected news from our doctors....

https://connect.mayoclinic.org/comment/739419/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

@loribmt I w as taking Temozolomide (Temodar) for 3 months for NeuroEndocrine cancer and my CLL...

https://connect.mayoclinic.org/comment/1526711/

Discussion: Can Chronic Lymphocytic Leukemia (CLL) be cured?

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:16am

@nana120, I added your post to the NETs support group as well as the Blood Cancers...

https://connect.mayoclinic.org/comment/907845/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

@cindyjenco Hi Cindy. A belated welcome to Connect. I see you’ve been a member for a...

https://connect.mayoclinic.org/comment/1511053/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 9:15am

Welcome to Connect @traillens47. You’re looking for information of the prognosis of living with CLL beyond...

https://connect.mayoclinic.org/comment/1076492/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

Don’t wait until September. Go see a CLL expert NOW!

https://connect.mayoclinic.org/comment/1316990/

Discussion: Newly diagnosed with chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: May 31, 2025

I am newly diagnosed with CLL anyone else new to it also?

https://connect.mayoclinic.org/comment/1314413/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Does anyone have anemia as a result from indolent CLL?

https://connect.mayoclinic.org/comment/843583/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

I was diagnosed with CLL in January so far just tire easily!

https://connect.mayoclinic.org/comment/1286185/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025