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Anyone diagnosed with atypical CLL?

Posted by ksalvia @ksalvia, May 5 12:14pm

DX of aCLL seems to have completely different symptoms than typical CLL. Just trying to find others who share the same atypical dx that my husband has. PS he’s on Brukinsa a little over a month now.

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mrgreentea | @mrgreentea | May 5 1:34pm

Hi @ksalvia, I had not heard of this. I assume that you have scanned the web and found papers like this (https://pmc.ncbi.nlm.nih.gov/articles/PMC10527541/)? Another source I'd recommend trying is joining the CLL group at https://healthunlocked.com/. They have a lot of knowledgeable folks there that are quite responsive.

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ksalvia | @ksalvia | May 5 2:31pm

Thanks. Yes, I have found that paper and read it previously. I will look into healthunlocked.com. It looks interesting! Thanks again.

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