Blood Cancers & Disorders Support Group

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Comments (1,102)

Hi there I have PV and jak 2 and am on hydroxy they have now got...

https://connect.mayoclinic.org/comment/937498/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

I chose not to do the bone marrow biopsy. The doctor did the JAK 2 and...

https://connect.mayoclinic.org/comment/926934/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I have PCV with Jak 2 . I take 2 baby aspirin a day and phlebotomy...

https://connect.mayoclinic.org/comment/919662/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Well the sweating subsided when I lost 70 lbs not trying after all RBS COUNT CLIMBED!...

https://connect.mayoclinic.org/comment/912134/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist...

https://connect.mayoclinic.org/comment/912113/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I was frantically looking for answers for 2 years for my itching as my blood counts...

https://connect.mayoclinic.org/comment/870291/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

I’m 63. Did you get tested for Jak-2 mutation?

https://connect.mayoclinic.org/comment/846289/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I am on Hydroxyuria for ET. I have the JAK 2 mutation as well. After reading...

https://connect.mayoclinic.org/comment/801334/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

My platlets were at over a million and pain in my feet was unbearable. I had...

https://connect.mayoclinic.org/comment/599861/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

I'm five mos in from the discovery of JAK 2, started at 680, now hovering above...

https://connect.mayoclinic.org/comment/194365/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Hi. She has ET. It's driver, if I'm saying it right was the mutation of the...

https://connect.mayoclinic.org/comment/1210770/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 4:01pm

Hello, About a year ago I was diagnosed with antiphospholipid antibody syndrome and JAK 2 Mutation...

https://connect.mayoclinic.org/comment/194326/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

@Susan Ellis I take 2 Hydrea a day every day. Up until recently it kept them...

https://connect.mayoclinic.org/comment/194282/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site...

https://connect.mayoclinic.org/comment/132610/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017