Is Idiopathic Erythrocytosis (Polycythemia) cancer?
I have had this red cell proliferation for more than 3 years. After 2 years, of doctors managing it with phlebotomies and meds, it appears there's no answers as to why & where it's coming from after much testing and fruitless searching. Doctors have told me it's Idiopathic erythrocytosis, not PV. I'm wondering why there is no information out there on whether it's cancer or not. There seems to be some worldwide disagreement on this. I'm quite frustrated at not being able to find out more. Can someone tell me if it is cancer or not and if there are hematologists that have more knowledge about this disorder so that I may get some answers? I still have rising hematocrit, (now 49%) so I'm concerned about blood clots, etc.