Blood Cancers & Disorders Support Group

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Comments (2,234)

Reply to @1oldsoul When I first started this journey, I based my Hematology questions on ashpublications...

https://connect.mayoclinic.org/comment/1179742/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

@jrich1724 Thank you so much for sharing! I think with MGUS or SMM, getting a second...

https://connect.mayoclinic.org/comment/1491984/

Discussion: People diagnosed with MGUS under 45

Support Group: Blood Cancers & Disorders

Posted: Jan 27 3:20pm

I believe it’s important to look at your specific MGUS lab values and ask your doctor...

https://connect.mayoclinic.org/comment/837287/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

Thanks so much for your response. What is your free Kappa level if you don't mind...

https://connect.mayoclinic.org/comment/804532/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

My hematologist tells me MGUS is not a disease and does not require treatment. She says...

https://connect.mayoclinic.org/comment/74586/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2019

I'm 70 and have had MGUS and polyneuropathy for 8 years, still asymptomatic. My kappa level...

https://connect.mayoclinic.org/comment/1189012/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

Thank you, Ginger! I am thankful to have found this site, and I appreciate your insight....

https://connect.mayoclinic.org/comment/1162132/

Discussion: MGUS: Should I be concerned that my eGFR dropped from 77 to 57

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2024

I don't have an MGUS diet. I have had celiac disease (gluten free) for 15 years...

https://connect.mayoclinic.org/comment/1119732/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

FYI.....My doctor did reply back and state that a skeletal CT would be sufficient along with...

https://connect.mayoclinic.org/comment/1350498/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

My MGUS was discovered when I began to feel mild tingling in both feet. My PCP...

https://connect.mayoclinic.org/comment/1089312/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

@dazlin Before you get too upset, wait to see what your supplemental insurance covers. This concerns...

https://connect.mayoclinic.org/comment/233251/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2018

@googi Thanks for the context. As you have been told and have read, the likelihood of...

https://connect.mayoclinic.org/comment/1372181/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

Hello! I’m glad you are going to search around for a more attentive physician. The medical...

https://connect.mayoclinic.org/comment/903456/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023

Dx bmb & aspiration was august 2021, symptomatic MGUS (just shy of SMM) and I felt...

https://connect.mayoclinic.org/comment/900604/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

@pmm...i wasn't going to bother after so many tries. Mainly because my blood work has improved...

https://connect.mayoclinic.org/comment/1289175/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2025

I was also diagnosed with MGUS after routine labs. I also was told not to worry...

https://connect.mayoclinic.org/comment/1113919/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

I have driven to Mayo Clinic from south central PA since diagnosed with MGUS in 2002....

https://connect.mayoclinic.org/comment/74590/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2019

Diagnosed in 2016 with MGUS, still expect to ring in the New Year, during which I'll...

https://connect.mayoclinic.org/comment/1180182/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Thank you cat1952. I started this whole process with a "neuropathy" in my feet, but the...

https://connect.mayoclinic.org/comment/892987/

Discussion: MM Stage 6 done, any thoughts--BMT or monthly treatment?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 9, 2023

@butkus51 Once again, your case shows to all of us that we are each in the...

https://connect.mayoclinic.org/comment/816093/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023