Blood Cancers & Disorders Support Group

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Comments (1,899)

@skate Welcome to Mayo Clinic Connect. Your experience seems to follow what many of us have...

https://connect.mayoclinic.org/comment/1182654/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Good question, but they made it seem like it’s nothing to worry about, and I’ve been...

https://connect.mayoclinic.org/comment/944171/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hi, I just joined and saw your post about Evusheld. I was just diagnosed with MGUS...

https://connect.mayoclinic.org/comment/738977/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...

https://connect.mayoclinic.org/comment/1163095/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I’m very sorry to hear this 😔 I agree it would be super helpful to find...

https://connect.mayoclinic.org/comment/961973/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@jzeee Let me echo my welcome to Mayo Clinic Connect. MGUS is not a "death sentence",...

https://connect.mayoclinic.org/comment/928182/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi mguspixi25, I am doing well. As I mentioned it is more common in folks my...

https://connect.mayoclinic.org/comment/883986/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Good morning, I have had the diagnosis for four years. I am a 75-year-old caucasian male....

https://connect.mayoclinic.org/comment/1179730/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

So one of the questions for me is, how much of my aches and pains are...

https://connect.mayoclinic.org/comment/846620/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hello Deryl, Given that MGUS is usually present for many years before it is discovered, it...

https://connect.mayoclinic.org/comment/640131/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2021

@pmm...thank you for your reply. I just was at mayo for another unrelated issue to mgus....

https://connect.mayoclinic.org/comment/1289061/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 24 3:20pm

CHIP (clonal hematopoiesis of indeterminate potential) is a type of excess blood cell production by the...

https://connect.mayoclinic.org/comment/1087252/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I was diagnosed with MGUS 8 years ago (IgA Kappa light chain) and have had osteoporosis...

https://connect.mayoclinic.org/comment/1087215/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Just remember, you can have MGUS for many years and not show any symptoms. I had...

https://connect.mayoclinic.org/comment/748653/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Those questions are beyond my experience level. Hopefully one's oncologist communicates with other organizations, knows about...

https://connect.mayoclinic.org/comment/1203889/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 3:35pm

I would really appreciate you providing me some information. I was recently diagnosed a few months...

https://connect.mayoclinic.org/comment/1155517/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

https://iris.uniroma1.it/retrieve/e383532d-0a89-15e8-e053-a505fe0a3de9/Farina_Transient-plasma_2021.pdf This is an Italian study - again shows a monoclonal gammopathy found unexpectedly in Covid...

https://connect.mayoclinic.org/comment/1035097/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

hi I was diagnosed with MGUS a few years ago and I have had zero information...

https://connect.mayoclinic.org/comment/913671/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

I was also recently diagnosed with MGUS. I enjoyed reading response from @pmm - very good...

https://connect.mayoclinic.org/comment/814687/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2023