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dazlin
@dazlin

Posts: 91
Joined: Jan 14, 2018

Tests for blood cancer ...the bills!!

Posted by @dazlin, Fri, Dec 7 4:36pm

I've been getting blood tests through Mayo Clinic to monitor MGUS. I recently became covered by Medicare. My bill has jumped up to near $500 per blood test. I also have a secondary insurance to be submitted. This leaves me with close to $1,000 a year for bloodwork only!! I dont get it!!
I cant do this to be watched with no treatment. Yes, I have made several calls in about this matter…I'm not getting anywhere. I really think, since I cannot afford such payments, I will have drop out. Mayo has been my best care ever…but it doesn't make sense that my fees goes from $60 to $500 because I'm on on Medicare?? So sad…I'm on my own because I cant have mayo watch me.

REPLY

Also… I dont understand why s.s. deducts hundreds of dollars each month for Medicare, then my blood tests cost 5x more. Is this a Mayo norm?? I realize this is a billing topic…but I'm being screened for MGUS.

@dazlin Before you get too upset, wait to see what your supplemental insurance covers. This concerns me, too, because at the end of this month I have to get my semi-annual bloodwork for MGUS, also. It will be my first round of bloodwork on Medicare.
Ginger

@gingerw

@dazlin Before you get too upset, wait to see what your supplemental insurance covers. This concerns me, too, because at the end of this month I have to get my semi-annual bloodwork for MGUS, also. It will be my first round of bloodwork on Medicare.
Ginger

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@gingerw , I'm going over every test. I'll keep you informed. Best to you!

A recent patient of Memorial Sloan Kettering, I had a series of advanced genetic tests. $17k and my co-pay was $1,600. I'm already sick, but this took me to the edge! Very disturbed….
A friend of mine has an incurable form of chronic leukemia. His meds are $13k/mo.
Our political "leaders" are more busy fundraising and not dealing with big pharma and killing us all.

Liked by cindylb, gingerw

@shenriq

A recent patient of Memorial Sloan Kettering, I had a series of advanced genetic tests. $17k and my co-pay was $1,600. I'm already sick, but this took me to the edge! Very disturbed….
A friend of mine has an incurable form of chronic leukemia. His meds are $13k/mo.
Our political "leaders" are more busy fundraising and not dealing with big pharma and killing us all.

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The cost of treatment and the inability of some patients to cover those costs………is just an added stressor that makes people sicker and it's everywhere. It's unforgiveable on the part of the insurance industry, the Congress and the medical and pharmaceutical industry. I've seen two people DIE because they couldn't afford care and they were middle class family and friends. This is a very real and terrible part of the current medical system. I won't say more. Once I get started on this subject I can't be stopped….

@dazlin I think dealing with billing is one of the hardest parts of cancer. We are so worn out and matching EOBs to hospital bills can be so frustrating. I have found billing people at most helpful in explaining. If you have strait Medicare and no supplement, you owe 80% after a deductible typically. But if you have supplemental or a Medicare advantage plan, it would cover most of that. I'd call billing and ask them to walk you through it. Sometimes you get a bill when your insurance company does, but it is not for payment, just information. Your final bill for payment should show what Medicare paid and what you then owe and it should match the EOB (estimation of benefits) sent by Medicare or your supplemental company. The best advice is to ask a trusted friend or family member to handle this for you so you can not have the added stress. They can sign in to your insurance and/or Medicare and look at everything. Best of luck during this trying time.

@cindylb

The cost of treatment and the inability of some patients to cover those costs………is just an added stressor that makes people sicker and it's everywhere. It's unforgiveable on the part of the insurance industry, the Congress and the medical and pharmaceutical industry. I've seen two people DIE because they couldn't afford care and they were middle class family and friends. This is a very real and terrible part of the current medical system. I won't say more. Once I get started on this subject I can't be stopped….

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@cindylb I totally understand your frustration and I have seen similar cases. But it’s the system we have to work with right now. We could all use her voices and those of our friends and family to fight for better, but I think supporting each other in figuring out how to navigate what we’re dealing with is the best way to cope in meantime. It’s ridiculous that we have to, but it’s what we have at the moment.

Liked by ckeys

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