Blood Cancers & Disorders Support Group | Page 4

Hello @kharmer and welcome to Connect. With your husband’s blood numbers being low, especially his hemoglobin,...

https://connect.mayoclinic.org/comment/1285209/

Discussion: has anyone had Long Covid, before a diagnosis of MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2025

I have MDS.

https://connect.mayoclinic.org/comment/1031190/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

@twitt1949, I moved your question about MDS and skin itching to this existing discussion where you...

https://connect.mayoclinic.org/comment/1527691/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Mar 15 4:10pm

@chrissy2310 Hello, I recently was told from a genetic test from biopsy and after wbc and...

https://connect.mayoclinic.org/comment/1567847/

Discussion: B12 deficiency mimicking MDS

Support Group: Blood Cancers & Disorders

Posted: May 6 7:45am

@krag1949 Just looking at that "1949" in your user name and wondering if you are a...

https://connect.mayoclinic.org/comment/1587295/

Discussion: Effectiveness of HU on ET w/MPL?

Support Group: Blood Cancers & Disorders

Posted: May 31 8:13am

@revbobcoulson There is an MDS extended fish panel. Clinical Significancee The MDS Extended FISH Panel accommodates...

https://connect.mayoclinic.org/comment/1216361/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

I was diagnosed with MDS in December. It was found after a Bone Marrow Biopsy and...

https://connect.mayoclinic.org/comment/1525729/

Discussion: Anyone dealing with MDS?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 6:58am

I too have recently diagnosed MDS in "Watch and wait" mode. It's tp53, which does not...

https://connect.mayoclinic.org/comment/1509493/

Discussion: MDS with weight loss, dizziness & weakness

Support Group: Blood Cancers & Disorders

Posted: Feb 19 8:29am

Welcome to Connect, @atsfmoji. There are quite a few members in the Blood Cancer support group...

https://connect.mayoclinic.org/comment/1248086/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

@loribmt Hi Again My doctor just called me back. I asked about other forms of MDS...

https://connect.mayoclinic.org/comment/1524833/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 5:52pm

Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS...

https://connect.mayoclinic.org/comment/1170515/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2024

@sunshine1983 You may be correct but I have MDS and my doctor has talked about blasts...

https://connect.mayoclinic.org/comment/1581104/

Discussion: Questions about Blasts

Support Group: Blood Cancers & Disorders

Posted: May 23 7:55am

Anyone diagnosed with MDS and Parkinson's Disease?

https://connect.mayoclinic.org/comment/1245801/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Feb 26, 2025

MDS low risk mutation sf3b1

https://connect.mayoclinic.org/comment/1229431/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

MDs may be in my future Maybe in one year maybe 5 I had 60transfusions last...

https://connect.mayoclinic.org/comment/1576851/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 17 3:57pm

@shmerdloff Is this what you mean? #MDS with SF3B1 mutation IPSS-M -1.01 low risk, RIPSS very...

https://connect.mayoclinic.org/comment/1576201/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 16 9:00pm

Hi Brenda! New here. Just diagnosed in July, but evidence suggests I have had the disease...

https://connect.mayoclinic.org/comment/985991/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

MDS isn’t that related to leukemia blood cancer?

https://connect.mayoclinic.org/comment/1194209/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Was it determined your MDS was therapy related? Thanks!

https://connect.mayoclinic.org/comment/1266515/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025