Blood Cancers & Disorders Support Group | Page 4

Hello @kharmer and welcome to Connect. With your husband’s blood numbers being low, especially his hemoglobin,...

https://connect.mayoclinic.org/comment/1285209/

Discussion: has anyone had Long Covid, before a diagnosis of MDS?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2025

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

@sonieaml So, do you have AML? I thought MDS was a precursor to MDS. I figured...

https://connect.mayoclinic.org/comment/1549629/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 13 11:22am

@revbobcoulson There is an MDS extended fish panel. Clinical Significancee The MDS Extended FISH Panel accommodates...

https://connect.mayoclinic.org/comment/1216361/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Welcome to Connect, @atsfmoji. There are quite a few members in the Blood Cancer support group...

https://connect.mayoclinic.org/comment/1248086/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS...

https://connect.mayoclinic.org/comment/1170515/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2024

As mentioned I'm 77 and all my life my body has recovered/healed for many different mishaps...

https://connect.mayoclinic.org/comment/1549258/

Discussion: Just noticed this today: MDS and bruising?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 5:42am

Anyone diagnosed with MDS and Parkinson's Disease?

https://connect.mayoclinic.org/comment/1245801/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Feb 26, 2025

MDS low risk mutation sf3b1

https://connect.mayoclinic.org/comment/1229431/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

I have the same mutations with my MDS. I am about to try Immetelstat. Any information...

https://connect.mayoclinic.org/comment/1493175/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 8:14am

Hi Brenda! New here. Just diagnosed in July, but evidence suggests I have had the disease...

https://connect.mayoclinic.org/comment/985991/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

@hlmcneely Please will you both make certain that your CBC-with-a-differential blood work is normal?!?! I had...

https://connect.mayoclinic.org/comment/1535328/

Discussion: MDS and thin skin: What else to watch out for as time goes on?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:52pm

Was it determined your MDS was therapy related? Thanks!

https://connect.mayoclinic.org/comment/1266515/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

Hi @bbmj06 Your reply is so sweet, thank you! It’s also a reminder that when we...

https://connect.mayoclinic.org/comment/1549849/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:19pm

MDS isn’t that related to leukemia blood cancer?

https://connect.mayoclinic.org/comment/1194209/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Thanks, suetex! I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji...

https://connect.mayoclinic.org/comment/1100293/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Good morning Bonnie. I too have MDS. I was diagnosed last year, but believe I have...

https://connect.mayoclinic.org/comment/1053654/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

We learned that MDS can be related to AML; but not necessarily. My husband has had...

https://connect.mayoclinic.org/comment/1199185/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Have you seen a hematologist? With profound fatigue, history of severe anemia, AND bone pain, a...

https://connect.mayoclinic.org/comment/1548879/

Discussion: Newly diagnosed with Iron Deficiency Anemia

Support Group: Blood Cancers & Disorders

Posted: Apr 12 2:34pm

Blessings for you and your wife. I was diagnosed in 2021 with MDS and it progressed...

https://connect.mayoclinic.org/comment/1521594/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 7 9:28am