Blood Cancers & Disorders Support Group

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Comments (992)

@barbwsm Hi. I was diagnosed with MDS with anemia a year ago. My doctor told me...

https://connect.mayoclinic.org/comment/1526768/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Mar 14 12:10pm

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

@revbobcoulson There is an MDS extended fish panel. Clinical Significancee The MDS Extended FISH Panel accommodates...

https://connect.mayoclinic.org/comment/1216361/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Welcome to Connect, @atsfmoji. There are quite a few members in the Blood Cancer support group...

https://connect.mayoclinic.org/comment/1248086/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

I have MDS. Cannot reach 12! On Procreit. Now I am eating spinach & beans. Will...

https://connect.mayoclinic.org/comment/1476730/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 7 12:39pm

Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS...

https://connect.mayoclinic.org/comment/1170515/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2024

Anyone diagnosed with MDS and Parkinson's Disease?

https://connect.mayoclinic.org/comment/1245801/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Feb 26, 2025

MDS low risk mutation sf3b1

https://connect.mayoclinic.org/comment/1229431/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

I have the same mutations with my MDS. I am about to try Immetelstat. Any information...

https://connect.mayoclinic.org/comment/1493175/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 8:14am

Hi Brenda! New here. Just diagnosed in July, but evidence suggests I have had the disease...

https://connect.mayoclinic.org/comment/985991/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Was it determined your MDS was therapy related? Thanks!

https://connect.mayoclinic.org/comment/1266515/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

@hlmcneely Please will you both make certain that your CBC-with-a-differential blood work is normal?!?! I had...

https://connect.mayoclinic.org/comment/1535328/

Discussion: MDS and thin skin

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

MDS isn’t that related to leukemia blood cancer?

https://connect.mayoclinic.org/comment/1194209/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Thanks, suetex! I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji...

https://connect.mayoclinic.org/comment/1100293/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Good morning Bonnie. I too have MDS. I was diagnosed last year, but believe I have...

https://connect.mayoclinic.org/comment/1053654/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

We learned that MDS can be related to AML; but not necessarily. My husband has had...

https://connect.mayoclinic.org/comment/1199185/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@loribmt I wasn't aware that there are several different types of MDS. She may have told...

https://connect.mayoclinic.org/comment/1524508/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:27am

I don't mind your questions. My WBC are currently 2.3 and Neut .50. I have curtailed...

https://connect.mayoclinic.org/comment/1366837/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

You need to do bone marrow biopsy to detect MDS

https://connect.mayoclinic.org/comment/1110210/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

Hi @dde83! Wouldn’t that be great if fried chicken was the cure for MDS?!? There’d be...

https://connect.mayoclinic.org/comment/1308349/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025