I would like to hear your experience with MDS

This may be a broad question because MDS has different types of symptoms. (Can't think of the right word).
Anyways what I'd like to know is doctor told me the first time we met she confirmed I had MDS she said of all the cancers out there she would choose MDS for herself if she had to have one. She said normally since its very slow growing there is usually (and in my case) there is 7-8 yrs before anything will have to be done medically other than run blood tests regularly.
Has anyone else been told of several years before it gets bad. If so, what quality of life is the 7-8 years? I know weakness and getting tired is normal and I can handle that and hope thats all there is. But the last few days I feel like crap and my thoughts are its going to be a long 7-8 yrs. What experiences do you have?