Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

751 total results

Comments (697)

Thanks Lori. I should know by now not to try and control everything in my life...

https://connect.mayoclinic.org/comment/1120728/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

I have MF and MDS. My spleen was huge and the pain and discomfort were bad....

https://connect.mayoclinic.org/comment/1002865/

Discussion: What relieves pain from an enlarged spleen in leukemia?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Hi @sgt, I’m grateful @sueinmn brought me into this conversation. Oh gosh, believe me, I know...

https://connect.mayoclinic.org/comment/755932/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Yes I had a Bone Marrow Biopsy (my third) on July 10th, just as I was...

https://connect.mayoclinic.org/comment/1112723/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Hi Debbie, I was diagnosed in January 2019 at Sloan after a bone marrow procedure and...

https://connect.mayoclinic.org/comment/328594/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

There are a series of genetic tests that can be performed to help determine mutations, as...

https://connect.mayoclinic.org/comment/252004/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Day 106 post allogenic transplant for my beloved husband. It’s been quite a ride. His transplant...

https://connect.mayoclinic.org/comment/1185289/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

I thought my husband just had the flu. He had a fever and some chest congestion...

https://connect.mayoclinic.org/comment/1134680/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

I am 66 years young and was diagnosed with MDS syndrome #5 , I am asymptomatic...

https://connect.mayoclinic.org/comment/1243996/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 5:10pm

j0318- Are you in the "Be a Match" pool? I am not sure your background, but...

https://connect.mayoclinic.org/comment/1168836/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 5, 2024

I'm also taking curcumin capsules, 500 mg each, two a day. Natural therapies, that's a pretty...

https://connect.mayoclinic.org/comment/1092156/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

It really would be much less worry if you could wait and see if your absolute...

https://connect.mayoclinic.org/comment/622954/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

Not yet; so far, only my platelets have gone down. The rest are still normal. I...

https://connect.mayoclinic.org/comment/1160042/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

To all of you. This road is not easy, and fear is waiting for you. Do...

https://connect.mayoclinic.org/comment/1098199/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Ryan, my husband was diagnosis with MDS and just 1% from AML in August of 22...

https://connect.mayoclinic.org/comment/1062448/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Thank you both for thee updates!! As i took my walk today i thought that without...

https://connect.mayoclinic.org/comment/1185491/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

Well, I got news from my sister, that my cat died early this morning. Honestly, what...

https://connect.mayoclinic.org/comment/1102250/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 9, 2024