Blood Cancers & Disorders Support Group | Page 30

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

@shoch1957 Myelodyplastic syndromes, or MDS are a group of blood disorders where the blood-forming cells in...

https://connect.mayoclinic.org/comment/1463886/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

I expect your sister is feeling a little more perky tonight after her transfusion today. I’m...

https://connect.mayoclinic.org/comment/1120359/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Hi @marco88. I read through your replies in a few other posts this morning to see...

https://connect.mayoclinic.org/comment/1199389/

Discussion: What's the danger in longterm use of filgrastim (Neupogen)?

Support Group: Cancer

Posted: Dec 29, 2024

Good morning, @ron79mds. With MDS (myelodyplastic syndromes) the blood stem cells aren’t able to mature into...

https://connect.mayoclinic.org/comment/1448778/

Discussion: 79 year old male with MDS: Worried about increasng fatigue

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Hi, I hope you don’t mind me commenting but I just had to share that my...

https://connect.mayoclinic.org/comment/1080466/

Discussion: Have you been able to reverse Anemia of Chronic Disease (ACD)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

This was a good contact for aplastic anemia trials with Dr. Neal Young and I think...

https://connect.mayoclinic.org/comment/1371843/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

Hi Lesley, Welcome to Connect. I’m glad you joined into the conversation. The reply that you...

https://connect.mayoclinic.org/comment/1368911/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

@donnamae90 Fatigue is a problem with MDS. I too live alone. I have accepted that I...

https://connect.mayoclinic.org/comment/1193426/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Happy Birthday to you too, @janetlen. We’re both Classy Chassis, eh? 😉 Not sure I’m in...

https://connect.mayoclinic.org/comment/986993/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Hi Lori, I didn’t want to post this in the other chat, but my brother who...

https://connect.mayoclinic.org/comment/1117789/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Hi Lori - I told you I would let you know my bone marrow biopsy results....

https://connect.mayoclinic.org/comment/1262156/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 19, 2025

Hi @auntsue303, I'm tagging a few members like @jelilien @jrwilli1 @momz who have experience with MDS...

https://connect.mayoclinic.org/comment/1000878/

Discussion: Anyone taking retacrit and releuko injections for MDS

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

@normahorn - what kind of physical problems did you have? I have CCUS and a high...

https://connect.mayoclinic.org/comment/1447031/

Discussion: Elevated Vitamin B 2 results x 2. What are the implications?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2025

I had MDS with A TP53 mutation. I agree with all that was said. None of...

https://connect.mayoclinic.org/comment/1403201/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Hi @asarnesejr, From what I’m understanding, your doctor is recommending a Allogenic stem cell transplant (SCT)...

https://connect.mayoclinic.org/comment/1476506/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Jan 7 9:43am

I too have MDS. Mainly my red blood cells are affected but he does watch my...

https://connect.mayoclinic.org/comment/801152/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

huron Have you entered either of these 2 cancers above in the search. There are many...

https://connect.mayoclinic.org/comment/1276353/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

@shoch1957 I hear you. It's kind of like what came first, the chicken or the egg!...

https://connect.mayoclinic.org/comment/1463833/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025