Blood Cancers & Disorders Support Group

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Comments (567)

I live in Upstate NY and there is no MDS expert in my area. I drive...

https://connect.mayoclinic.org/comment/235272/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I wanted to add that after my 1st BMB i was diagnosed with MDS. They were...

https://connect.mayoclinic.org/comment/1109258/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2024

Would like to hear from others with MDs an Pancytopenia an treatment they are receiving

https://connect.mayoclinic.org/comment/845533/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Welcome, @mamapocho01. I moved your question about myelodysplastic syndrome (MDS) with deletion 5q to this existing...

https://connect.mayoclinic.org/comment/1080300/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

@pathilt - Siteman is an MDS Center of Excellence. Keep us posted on progress.

https://connect.mayoclinic.org/comment/1113543/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

I am curious to know what signs, symptoms, or tests results appear for MDS to require...

https://connect.mayoclinic.org/comment/950197/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Welcome to Connect @stevefenton. Thank you for sharing your experience with Vidaza/Venetoclax for AML. Sounds like...

https://connect.mayoclinic.org/comment/1155582/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

Hello @jonkerri and welcome to Mayo Connect. I appreciate you posting an encouraging message to @yellowlab123...

https://connect.mayoclinic.org/comment/1180912/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

My husband has MDS red-cell blood cancer after handling Roundup for many years back in the...

https://connect.mayoclinic.org/comment/291016/

Discussion: Hodgkin's & non-Hodgkin's Lymphoma: Is it familial?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2020

Also, don't know if the redness was related to my MDS, of if it was a...

https://connect.mayoclinic.org/comment/949540/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

Oh MDS ! How old?Which type?How did you diagnosed with it ?

https://connect.mayoclinic.org/comment/1031219/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

Thanks @colleenyoung! Melody here. @ikampel2, living with a chronic illness can be a roller coaster and...

https://connect.mayoclinic.org/comment/94441/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2016

Hello everyone so doc said mds pre leukemia an said due to past cancer I can’t...

https://connect.mayoclinic.org/comment/820615/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hello @jaylevel1. You may notice I moved your discussion and combined it with your original discussion...

https://connect.mayoclinic.org/comment/226236/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

How was your MDS diagnosed? Any CBC indicators? What symptoms did you experience?

https://connect.mayoclinic.org/comment/896563/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the...

https://connect.mayoclinic.org/comment/194329/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2019

My 77 yr. Old husband has been diagnosed with unclassified MDS for 5 yrs. In October...

https://connect.mayoclinic.org/comment/996211/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

I have MDS/MPN with SF3B1 and ET. It's basically the same as MDS/MPN RS T -...

https://connect.mayoclinic.org/comment/970212/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024