Blood Cancers & Disorders Support Group

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Comments (543)

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

I was diagnosed in 2024. Started sprycel with almost no side effects. A little sun sensitivity...

https://connect.mayoclinic.org/comment/1562095/

Discussion: Does anyone have chronic myeloid leukemia (CML)?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 7:22pm

@okiebon , i started treatment March 17 with just Darzalex and that afternoon I was diagnosed...

https://connect.mayoclinic.org/comment/1560267/

Discussion: DVRd quadruple therapy for myeloma: Nervous about side effects

Support Group: Blood Cancers & Disorders

Posted: Apr 26 4:42pm

That’s a lot to consider. Like Lori, I had to digest what you wrote before responding....

https://connect.mayoclinic.org/comment/816572/

Discussion: Follicular Lymphoma and husband wants to continue trying for child

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Good morning talmadge81! Thank you for sharing your journey. I’m so sorry you had to go...

https://connect.mayoclinic.org/comment/743790/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2022

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to...

https://connect.mayoclinic.org/comment/1394155/

Discussion: Symptoms of non Hodgkin's Lymphoma ?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

Hi Bridget, I read your message about the small red lesion and wanted to share my...

https://connect.mayoclinic.org/comment/205937/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

Hi @talmadge81 This itchy scalp and rash must really be all encompassing, especially since you glossed...

https://connect.mayoclinic.org/comment/743159/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2022

MY LV started in Jan 2019 and I know many of you have been dealing with...

https://connect.mayoclinic.org/comment/52586/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

I am a 58yr old male that was diagnosed wit CTCL last June. This after many...

https://connect.mayoclinic.org/comment/1078425/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2024

Have you ever had the lesions on your scalp biopsies? I had a very itchy rash...

https://connect.mayoclinic.org/comment/337176/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

@loribmt Dr. Rashid noticed it when he sat down to talk to me before my botox...

https://connect.mayoclinic.org/comment/1458508/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Hey @katgob! Can you believe it’s day 115 already?? When you’re at Day 0, anything past...

https://connect.mayoclinic.org/comment/1116881/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

Hi Lori, I've been doing some research and have read in several places that these targeted...

https://connect.mayoclinic.org/comment/747457/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Hi @gonefishinmt, I'm new to this site & first must say how good it feels to...

https://connect.mayoclinic.org/comment/82973/

Discussion: Treatment options for Livedoid Vasculopathy (LV)

Support Group: Skin Health

Posted: Feb 4, 2016

I originally came to connect.mayoclinic.org to learn more about my own MGUS condition. However, I am...

https://connect.mayoclinic.org/comment/851930/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

@treinbold This post is a flashback from when my husband who had been underdiagnosed by his...

https://connect.mayoclinic.org/comment/937332/

Discussion: Does smoldering multiple myeloma or myeloma cause skin problems?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

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