Blood Cancers & Disorders Support Group | Page 26

My husband was diagnosed with MDS over lapping Mylofibrosis symptom. He gets 2 units of blood...

https://connect.mayoclinic.org/comment/1578198/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 19 10:02am

@joaniech2004 Joanie, I have been in Connect for a few months reading since I was told...

https://connect.mayoclinic.org/comment/1549621/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 11:17am

Hi @donirankin. Oh goodness, your husband is certainly undergoning a number of health issues with having...

https://connect.mayoclinic.org/comment/1579784/

Discussion: How's your quality of life living with MDS?

Support Group: Blood Cancers & Disorders

Posted: May 21 9:51am

I have the same problem my marrow isn’t producing that is when after aBMB was done...

https://connect.mayoclinic.org/comment/1581218/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: May 23 10:18am

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...

https://connect.mayoclinic.org/comment/802874/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...

https://connect.mayoclinic.org/comment/797572/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

@jerrlin Diagnosed with PV 10 years ago. I am now 75 yrs old. Its been a...

https://connect.mayoclinic.org/comment/1521164/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:51pm

I am so sorry to hear about this change in your wife’s health. Are you seeing...

https://connect.mayoclinic.org/comment/1519998/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 6:52am

Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...

https://connect.mayoclinic.org/comment/1487573/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 5:24pm

Hi, I feel for your frustration. I, too, am experiencing some frustration too as my O/H...

https://connect.mayoclinic.org/comment/1250438/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...

https://connect.mayoclinic.org/comment/1131840/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

What do you mean they can't do much? That doesn't sound good at all! You need...

https://connect.mayoclinic.org/comment/1102499/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...

https://connect.mayoclinic.org/comment/894079/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

What dietary changes did you make to help with myleofibrosis?

https://connect.mayoclinic.org/comment/854017/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June...

https://connect.mayoclinic.org/comment/1431943/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

My platelets were 1.4 million in June 2025. My new oncologist at Virginia Cancer Institute performed...

https://connect.mayoclinic.org/comment/1422367/

Discussion: Seeking opinion about where to get a second opinion.

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

with platelets that high your very lucky you didnt have a clot form, TIA or even...

https://connect.mayoclinic.org/comment/1404569/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2025

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025