Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,502 total results

Comments (1,400)

After reading that so many JAK2 people experience being weak or tired, and have balance issues,...

https://connect.mayoclinic.org/comment/194344/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

@daelitesmom I have ET with the JAK2 mutation and suffered from monthly migraines after having them...

https://connect.mayoclinic.org/comment/1474859/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Jan 5 7:46am

When I first heard I had polycythemia Vera JAK 2 positive (Im sure everyone knows you...

https://connect.mayoclinic.org/comment/1455166/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Welcome to the club. Almost 71 yo woman w/ET a few months now. Platelets are in...

https://connect.mayoclinic.org/comment/848468/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Most on this site say that they are prescribed baby aspirin along with HU. I was...

https://connect.mayoclinic.org/comment/837314/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

I was diagnosed with Jak2 in 2019 and have been taking the hydra drug and I...

https://connect.mayoclinic.org/comment/194372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2021

@lea123. I also was told ET JAK2 on first diagnosis in 2023. But after 2 years...

https://connect.mayoclinic.org/comment/1446948/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2025

Thanks. It's helpful to hear your experience. Did your platelets stay stable over time and then...

https://connect.mayoclinic.org/comment/943016/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was just diagnosed with Jak2/ET and had a bone marrow biopsy that ruled out other...

https://connect.mayoclinic.org/comment/1193558/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Has anybody experienced being lightheaded/fainting, vomiting and sweating? It happened the second time to me yesterday....

https://connect.mayoclinic.org/comment/1519111/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 6:12am

Hmm, I think @1pearl mentioned that her platelet levels are dropping without meds and that she...

https://connect.mayoclinic.org/comment/1248005/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

I'm really interested in a list as well. Pomegranates or the juice is supposed to lower...

https://connect.mayoclinic.org/comment/1545681/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:18am

I am jak2 positive. On a low dose of Asa and Hydroxurea x 3 years. I...

https://connect.mayoclinic.org/comment/957213/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087422/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I've checked with AI ChatGBT...it gave a lot of info. Here is some of it... Why...

https://connect.mayoclinic.org/comment/1513662/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:49pm

I was told before I had the Jak2 positive that if it were Polycythemia secondary that...

https://connect.mayoclinic.org/comment/896033/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

Yes, the Jak2 was positive. And yes, I'm seeing an hematoligist. I knew the phlebotomy might...

https://connect.mayoclinic.org/comment/1399748/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

Hi @sarahgault, Welcome to Connect. I’m glad your best friend found this forum for you! They’re...

https://connect.mayoclinic.org/comment/1551911/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 10:09am

1
…
23
24
25
26
27
…
70