Blood Cancers & Disorders Support Group

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Comments (947)

Hi...my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given...

https://connect.mayoclinic.org/comment/256905/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2019

As I stated in my post, I thought there was something wrong with my brain due...

https://connect.mayoclinic.org/comment/812957/

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

I am + JAK2 and just had a biopsy and they still don't know for certain...

https://connect.mayoclinic.org/comment/194284/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2019

I’ve had ET w/Jak2 for 18 months. My functional medicine doc works w/my Heme doc (who...

https://connect.mayoclinic.org/comment/1094207/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I am 78 with ET JAK2, started taking HU 500 mg daily in June 2022. Started...

https://connect.mayoclinic.org/comment/790060/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I’ve had high platelets in the 600-700 range for close to 20 yrs. It was never...

https://connect.mayoclinic.org/comment/811832/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Have you filed a lawsuit claim with the VA yet? You may be entitled to medical...

https://connect.mayoclinic.org/comment/194353/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Did they do a molecular panel to determine which genes have mutated? The reason I ask...

https://connect.mayoclinic.org/comment/194333/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

Not knowing is more stress than dealing with truth & reality. .I have had two bone...

https://connect.mayoclinic.org/comment/720769/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

My platelets were rising starting in 2017, finally I was diagnosed with ET Jak2 in 2020....

https://connect.mayoclinic.org/comment/1141953/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work,...

https://connect.mayoclinic.org/comment/1202773/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Hello themyth, I have been able to work a very physical job. I did and do...

https://connect.mayoclinic.org/comment/821972/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Dear PinkFlamingo, Wow!! Sorry for what you are going through. I had the JAK2 blood work...

https://connect.mayoclinic.org/comment/836159/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Thank you I am looking into many things at the moment, perhaps a clinical trial for...

https://connect.mayoclinic.org/comment/50502/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2011

Hi Lorne…welcome to the site, Are you taking it with a full glass of water? Are...

https://connect.mayoclinic.org/comment/792340/

Discussion: Any recommendations for ongoing mild headaches with Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023