Blood Cancers & Disorders Support Group

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Comments (1,103)

Thank you for responding…after about a month of fighting with h the insurance company to approve...

https://connect.mayoclinic.org/comment/886301/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

When they do the bone marrow (BM) procedure they should do a molecular panel which looks...

https://connect.mayoclinic.org/comment/328591/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending...

https://connect.mayoclinic.org/comment/193900/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

I was diagnosed with ET Jak2 in 2021, my platelets went over 1,000, with HU and...

https://connect.mayoclinic.org/comment/930012/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

My functional medicine doc has me taking 10,000 IU Vit D daily to keep my levels...

https://connect.mayoclinic.org/comment/845564/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Hi Lynn. I was having tingling and numbness in my lips. It felt weird when I...

https://connect.mayoclinic.org/comment/839738/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2023

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone...

https://connect.mayoclinic.org/comment/774273/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

I am 77 and was recently diagnosed with JAK2 ET in September of this year and...

https://connect.mayoclinic.org/comment/777821/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

We’ve been monitoring my platelets for 11 years. They are always above the normal of 450....

https://connect.mayoclinic.org/comment/1319552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jun 3 3:26pm

I was diagnosed with ET and was referred to the Mayo Clinic in Arizona. After a...

https://connect.mayoclinic.org/comment/1327678/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 15 11:10am

Yes, HU lowers platelets. Mine went from a high of 800s to the 400s. It took...

https://connect.mayoclinic.org/comment/1152435/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2024

I was just diagnosed two weeks ago. Am 46 years old. Jak2 positive. Have just started...

https://connect.mayoclinic.org/comment/999753/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Hello everyone! I was diagnosed 3 months ago with pv and secondary eryth(not sure how to...

https://connect.mayoclinic.org/comment/795080/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Have you been diagnosed with PV? Your platelets are just slightly high and not dangerous. I...

https://connect.mayoclinic.org/comment/846633/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

A blood smear is normally used by a Hematologist to check for several suspected mutations. The...

https://connect.mayoclinic.org/comment/194324/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2019

Hi, I was recently diagnosed with Essential Thrombocytoss (ET) and Jak2 mutation, after elevated platelets over...

https://connect.mayoclinic.org/comment/252011/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2019