Blood Cancers & Disorders Support Group

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Comments (867)

Hello Bob, I would think that a hematologist/oncologist would be the definitive expert for you. MGUS...

https://connect.mayoclinic.org/comment/895672/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Here’s a study she references. I’ve pasted the conclusion part related to MM. My personal deduction...

https://connect.mayoclinic.org/comment/1312559/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Good morning @dkandalec. Thank you for sharing your positive story with taking the Revlimid and steroids...

https://connect.mayoclinic.org/comment/754406/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Welcome, Dianne! I don’t have much I can add to what Ginger shared. I think after...

https://connect.mayoclinic.org/comment/842935/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

First of all, your physicians are being cautious and checking everything! That’s good. The “normal” range...

https://connect.mayoclinic.org/comment/1062338/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...

https://connect.mayoclinic.org/comment/898854/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@tmcclint92 Is your doctor a hematologist oncologist? If not, can you be referred to one? I...

https://connect.mayoclinic.org/comment/1049629/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

I didn’t have any problems with side effects the entire time I was on it except...

https://connect.mayoclinic.org/comment/1407750/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

@nolarn Welcome to Mayo Clinic Connect! So many of us who are diagnosed with MGUS find...

https://connect.mayoclinic.org/comment/777355/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Hello @greyhoundlady, Welcome to Mayo Clinic Connect. Thank you for sharing your neuropathy story in the...

https://connect.mayoclinic.org/comment/109775/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: May 12, 2020

Hi Gloria, Welcome to Connect! It’s very encouraging that you’re having success with your treatments for...

https://connect.mayoclinic.org/comment/1102104/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

The PET scan didn’t “light up” any place except in my hiatal hernia, which is good...

https://connect.mayoclinic.org/comment/1101072/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

@yusbe Hopefully there will be a treatment plan soon for your husband. There are medications which...

https://connect.mayoclinic.org/comment/845078/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hi my brother aged 38 was diagnosed of multiple myeloma in Jan 2022. He underwent a...

https://connect.mayoclinic.org/comment/1020408/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

I have been diagnosed with MGUS for 8 to 10 years now, male age 77. Recently...

https://connect.mayoclinic.org/comment/1336383/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

Welcome to Mayo Clinic Connect @f019521 As I was reading up on this Monoclonal Gammopathy of...

https://connect.mayoclinic.org/comment/789892/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

It is a big decision finding the right Medicare plan. We have been on a UCare...

https://connect.mayoclinic.org/comment/777170/

Discussion: Medicare question: Traditional or Advantage approach better for MPNers

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Greetings Omemee. I was dx’d with MGUS over a year ago. I had a “lesion” on...

https://connect.mayoclinic.org/comment/720539/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

@nbadry Nicole, I am taking Revlimid for multiple myeloma. I have been on it since August...

https://connect.mayoclinic.org/comment/1160656/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2024