Blood Cancers & Disorders Support Group

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Comments (916)

@sunsetchris As @pmm Patty mentioned, MGUS usually is asymptomatic, so our doctors take a more laid...

https://connect.mayoclinic.org/comment/1224083/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2025

Thank you so much! We are quite similar with history of autoimmune disease. My GfR varies...

https://connect.mayoclinic.org/comment/1188612/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

Helchen, I hope you can first recognize your testing as positive opportunity with caring professionals. Second,...

https://connect.mayoclinic.org/comment/172467/

Discussion: Waiting on Multiple Myeloma testing

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2019

@carlabaz Hugs to you as well. It is hard, not knowing what is coming and how...

https://connect.mayoclinic.org/comment/1514618/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 6:07pm

@jrsav So, I'll say "thank you" in lieu of a picture! I have been on a...

https://connect.mayoclinic.org/comment/954992/

Discussion: Revlimid and colonoscopy.

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2023

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...

https://connect.mayoclinic.org/comment/807058/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

@madkm When I placed that into a Google search, it shows there are a few small...

https://connect.mayoclinic.org/comment/1471471/

Discussion: Coffee and Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

You didn't mention your Stage. . . 1, 2, or 3. You should ask for a...

https://connect.mayoclinic.org/comment/1461532/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2025

Most MGUS' do not progress any further. Some, of course, do to Smoldering (Asymetric) Myeloma (SM)...

https://connect.mayoclinic.org/comment/1170956/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

@jeannie215 hi Jeannie, welcome to the forum. Even though they tell you that MGUS is low...

https://connect.mayoclinic.org/comment/1008265/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

Don't forget to ask the doctor about whether simple measures could help. We dealt with DVTs...

https://connect.mayoclinic.org/comment/975089/

Discussion: Superficial blood clots, what do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

I don’t have answers, just prayers. But I do have experience with my husband and compression...

https://connect.mayoclinic.org/comment/264600/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2019

Good morning I am new to this but share much frustration. I have recently got blood...

https://connect.mayoclinic.org/comment/987128/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Don't fixate too much on this at this point. I went to neurologist for tingling toes....

https://connect.mayoclinic.org/comment/898502/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma...

https://connect.mayoclinic.org/comment/728026/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

Hi Gmill, Sorry to hear about your problems post the bone marrow biopsy. I’ve had 3...

https://connect.mayoclinic.org/comment/325262/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2020

Hello Bob, I would think that a hematologist/oncologist would be the definitive expert for you. MGUS...

https://connect.mayoclinic.org/comment/895672/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Hello. Here are the IMWG (International Myeloma Working Group) criteria for Diagnosis of MGUS, Smoldering Multiple...

https://connect.mayoclinic.org/comment/1447846/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

**Disclaimer: This information is for educational purposes. For a tailored monitoring plan, use tools like the...

https://connect.mayoclinic.org/comment/1567465/

Discussion: MGUS Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: May 5 4:06pm

@lcal12 Welcome to Mayo Clinic Connect. I am a multiple myeloma patient, under treatment since August...

https://connect.mayoclinic.org/comment/1435234/

Discussion: Are any of you Multiple Myeloma patients post kidney transplant?

Support Group: Transplants

Posted: Nov 10, 2025

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