Bone Marrow Aspiration - Long Term Pain Expecations

Posted by gmill123 @gmill123, Oct 14 9:09am

Hello –

I had a bone marrow aspiration completed for a stem cell banking process about 3.5 months ago now, and I’m still having pain as if it was done yesterday. I’ve seen a lot of doctors about it and they are all saying pretty much that I just have to wait.

Everything that I saw and read before the procedure said that I would be “normal” within 1-2 days after the procedure, and I’m just so shocked at how wrong all of that is.

Has anybody else had experience with a bone marrow aspiration?

Hi @gmill123 and welcome to Mayo Clinic Connect. You'll notice that I also added this discussion to the Blood Cancers group: https://connect.mayoclinic.org/group/blood-cancers-disorders/

Am I correct in assuming you are preparing for a stem cell transplant to treat a blood cancer?

I'd like to bring a few members into this discussion who have experience with bone marrow aspiration like @kjjjrader @loribmt @tedwueste @tmvanla and @duttasujata. in fact you may be interested in reading this discussion that @reevesk started:
– Persistent back pain after bone marrow test Persistent back pain after bone marrow test

Gmill, can you describe your pain and where it is? What are able to do to help get pain relief?

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Hi – Thank you for this.

No, I just had a bone marrow aspiration completed to bank stem cells for future use. I'm worried I had some permenant damage and I am not receiving adequate care from any doctor and I have to wait 2 months before I can get in to see a specialist.

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@gmill123

Hi – Thank you for this.

No, I just had a bone marrow aspiration completed to bank stem cells for future use. I'm worried I had some permenant damage and I am not receiving adequate care from any doctor and I have to wait 2 months before I can get in to see a specialist.

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Hello @gmill123,

I'm sorry to hear of the difficult time you are having recovering from the bone marrow aspiration. I'm sure that the recovery time is different for every person, however, if you cannot get in to see a specialist prior to 2 months, I would be inclined to call the office of the doctor who performed the aspiration and talk to a nurse or a PA and ask about the pain you are experiencing.

I'm assuming that you are talking about pain, however, are there other symptoms that you are experiencing as well? I'm thinking about a fever, chills, or something else.

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Hi, wow I’m really sorry you’re still having so much discomfort. I’ve had 10 bone marrow biopsies. The last two were 3 months apart and I’m still feeling quite ‘bruised’ and achey in that area. Tender to pressure. It is somewhat normal for discomfort to linger for a while. Weeks or months. What type of pain are you feeling? Sharp? Bruised? I’m sure this is so frustrating for you. I hope you can get some answers from your doctor. Usually the transplant team are the best source for answers. Keep in touch! It will be a benefit to hear from other members here who have gone through similar experiences.

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that's quite a few biopsies! Do you get them done from the same spot? the pain is a deep ache – it feels as if I had the procedure done yesterday.

Unfortunately, I can't speak to the doctor who did the procedure. It was at his private clinic and he's frustrated with me for asking so many questions so he's refused to work with me any longer.

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@gmill123

that's quite a few biopsies! Do you get them done from the same spot? the pain is a deep ache – it feels as if I had the procedure done yesterday.

Unfortunately, I can't speak to the doctor who did the procedure. It was at his private clinic and he's frustrated with me for asking so many questions so he's refused to work with me any longer.

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Seems to me you need to consult with another doctor.

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My first bone marrow biopsy was slightly sore for about two days. Waiting two months for a specialist is unacceptable. I know that is not helpful. Do you live in U.S?

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@colleenyoung

Hi @gmill123 and welcome to Mayo Clinic Connect. You'll notice that I also added this discussion to the Blood Cancers group: https://connect.mayoclinic.org/group/blood-cancers-disorders/

Am I correct in assuming you are preparing for a stem cell transplant to treat a blood cancer?

I'd like to bring a few members into this discussion who have experience with bone marrow aspiration like @kjjjrader @loribmt @tedwueste @tmvanla and @duttasujata. in fact you may be interested in reading this discussion that @reevesk started:
– Persistent back pain after bone marrow test Persistent back pain after bone marrow test

Gmill, can you describe your pain and where it is? What are able to do to help get pain relief?

Jump to this post

the pain is achiness and it is right at the biopsy site. It gets worse when I exercise instensley and / or am sedentary all day, but minor stuff like walking seems to help.

I am training for an ironman, though, so i can't really afford to wait around

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@jengri

My first bone marrow biopsy was slightly sore for about two days. Waiting two months for a specialist is unacceptable. I know that is not helpful. Do you live in U.S?

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Just 2 days? Like you have no further complications or anything?

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@jengri

Seems to me you need to consult with another doctor.

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Yes, I've seen one other doctor who wasn't able to do much as this doctor was not familiar with the bone marrow aspiration process. I had an ultra sound completed and have images but again I haven't really been told anything that will be helpful.

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@gmill123

Just 2 days? Like you have no further complications or anything?

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I did not have complications. The bone marrow biopsy was done at top of my left hip. My doctor has a lot of experience.

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@gmill123

Yes, I've seen one other doctor who wasn't able to do much as this doctor was not familiar with the bone marrow aspiration process. I had an ultra sound completed and have images but again I haven't really been told anything that will be helpful.

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I am very sorry . Your oncologist who performed the procedure should be helping you. Fever, chills would indicate infection. I have been told sometime biopsies cause nerve damage depending on the location. Nerve damage takes awhile to heal.

Liked by loribmt

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@gmill123

that's quite a few biopsies! Do you get them done from the same spot? the pain is a deep ache – it feels as if I had the procedure done yesterday.

Unfortunately, I can't speak to the doctor who did the procedure. It was at his private clinic and he's frustrated with me for asking so many questions so he's refused to work with me any longer.

Jump to this post

After my biopsy in 2011 which proved I had MF, I had an appointment with the consultant. She offered me the chemo tablet. I said, "No thank you, I cannot believe that something which does so much harm can be good for one!" She 'sacked' me on the spot. (Just as well). My GP, a fine man, got me another consultant and later I saw another who is very good. He accepts I am using natural supplements – with the help of a medical herbalist. He also said recently, in front of a student. "Whatever you are doing, keep on doing it. It is working. You are unusually stable!"

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@gmill123

that's quite a few biopsies! Do you get them done from the same spot? the pain is a deep ache – it feels as if I had the procedure done yesterday.

Unfortunately, I can't speak to the doctor who did the procedure. It was at his private clinic and he's frustrated with me for asking so many questions so he's refused to work with me any longer.

Jump to this post

All my biopsies were for diagnosis and progress Updates with my treatments of Acute Myeloid Leukemia and subsequent SCT. From what I’m reading about your experience I’d also recommend a change in treatment centers. I guess I’m not understanding who secured your stem cells for treatment. Will you be having a stem cell transplant? Cell harvesting is generally completed under the supervision of a stem cell/bone marrow transplant team. They’re dedicated to your treatment, care and education. If you’re not getting the answers you deserve then definitely seek expertise elsewhere. We ask a lot of questions of my team if concerns pop up and never dismissed out of hand. I’m so sorry you’re having a negative experience.

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@gmill123

Hi – Thank you for this.

No, I just had a bone marrow aspiration completed to bank stem cells for future use. I'm worried I had some permenant damage and I am not receiving adequate care from any doctor and I have to wait 2 months before I can get in to see a specialist.

Jump to this post

Hi Gmill,
Sorry to hear about your problems post the bone marrow biopsy. I’ve had 3 thus far, to detect and access the state of my disease – I have multiple myeloma. I have experienced soreness and pain post aspiration that lasted couple days to a week max. Reading your experience, it would be best to consult a specialist that really understands the procedure and your problem. Also, Since you are training for Ironman, I’m assuming you have a rigorous exercise routine – does that have anything to do with the discomfort?

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