Blood Cancers & Disorders Support Group

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Comments (491)

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

I have had serious abdominal pain since childhood, urticarias, cough problems, and other symptoms that match...

https://connect.mayoclinic.org/comment/134292/

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 3, 2017

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to...

https://connect.mayoclinic.org/comment/1394155/

Discussion: Symptoms of non Hodgkin's Lymphoma ?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

I totally understand your angst. As a 76 year old female, I felt great before the...

https://connect.mayoclinic.org/comment/1520763/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:06am

@loribmt I’m happy to hear you had a good result with your bone marrow transplant. Thank...

https://connect.mayoclinic.org/comment/1524587/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:47am

@samlupowitz Thank you, I have tried Xanax and other medications over the last 2+ years. None...

https://connect.mayoclinic.org/comment/1511818/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 8:25am

@carolgk Ask your doctor to try an SSRI, like Zoloft, Cymbalta, Lexapro. For some reason serotonin...

https://connect.mayoclinic.org/comment/1510307/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 20 9:36am

My doctor said is was probably caused by a chemical. When I mentioned I had been...

https://connect.mayoclinic.org/comment/1522514/

Discussion: Myelodysplastic syndromes and stomach problem?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 1:23pm

Hello! How's everyone doing?? I'm so happy to have found this group as I've really been...

https://connect.mayoclinic.org/comment/720738/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

Hi @gonefishinmt, I'm new to this site & first must say how good it feels to...

https://connect.mayoclinic.org/comment/82973/

Discussion: Treatment options for Livedoid Vasculopathy (LV)

Support Group: Skin Health

Posted: Feb 4, 2016

I use Cerave Itch Releif it works well for me.

https://connect.mayoclinic.org/comment/1383794/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Oh Lori. I am so happy you Know the treatments I am talking about. I know...

https://connect.mayoclinic.org/comment/1347488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Isabelle, I have PV and have great relief from that terrible itch after a shower by...

https://connect.mayoclinic.org/comment/1197983/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Bruises on the forearms are very common as we age. They can be quite large, dark...

https://connect.mayoclinic.org/comment/1152706/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

I am 74, prescribed Clobetasol. 05%. It seems to meditigate the eruption using morning and evening,...

https://connect.mayoclinic.org/comment/1113701/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

What is the name of your anti-itch cream? I use a product called Hempz which gives...

https://connect.mayoclinic.org/comment/1113092/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

I’m on HU since October 2021 for PV and currently taking 500 mg 4x week. Have...

https://connect.mayoclinic.org/comment/1001542/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

@treinbold This post is a flashback from when my husband who had been underdiagnosed by his...

https://connect.mayoclinic.org/comment/937332/

Discussion: Does smoldering multiple myeloma or myeloma cause skin problems?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Hi! I was diagnosed with follicular non Hodgkin’s lymphoma 3 years ago at 57. I had...

https://connect.mayoclinic.org/comment/925328/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 6, 2023