Blood Cancers & Disorders Support Group

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Comments (417)

Hi Becky, I moved your message to this existing discussion about light-chain MGUS to this existing...

https://connect.mayoclinic.org/comment/731453/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Hmm, I’ve had some rashes from the meds I was on and usually it’s just ‘grin...

https://connect.mayoclinic.org/comment/706333/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2022

My Fiance was recently diagnosed with Langerhans cell Histiocytosis. We are in search of a second...

https://connect.mayoclinic.org/comment/639606/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

Hi...my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given...

https://connect.mayoclinic.org/comment/256905/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2019

Not sure if this is still an active blog. I'm 23 years old and was diagnosed...

https://connect.mayoclinic.org/comment/52567/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2018

Hi, My local doctor told me to stop taking the Revlimid a week ago and I...

https://connect.mayoclinic.org/comment/1186032/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

I am a 58yr old male that was diagnosed wit CTCL last June. This after many...

https://connect.mayoclinic.org/comment/1078425/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2024

How to manage the itch related to Jak-2 Mutation

https://connect.mayoclinic.org/comment/1036859/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

Hello, I have PV as well. Sometimes it feels like a spider crawling on my skin...

https://connect.mayoclinic.org/comment/907811/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2023

in reply to @jerrlin It doesn't matter what time of the day, I itch. It has...

https://connect.mayoclinic.org/comment/897996/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

I was diagnosed with LCH at Mayo Clinic in 2016. I have skin only. After several...

https://connect.mayoclinic.org/comment/641408/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2021

Have you ever had the lesions on your scalp biopsies? I had a very itchy rash...

https://connect.mayoclinic.org/comment/337176/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

Good morning @trillium, @claire39. I just realized that I might have a solution for your scalp...

https://connect.mayoclinic.org/comment/337174/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

I use Eucerin or similar creams. Heavily oat them at night and wear cotton socks. I...

https://connect.mayoclinic.org/comment/146322/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

I took HU for 7 years. Never realized the side effects that were associated with that...

https://connect.mayoclinic.org/comment/1312590/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 25 1:04pm

Hi Bridget, I read your message about the small red lesion and wanted to share my...

https://connect.mayoclinic.org/comment/205937/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019