Blood Cancers & Disorders Support Group | Page 20

Torcia, stress does not elevate your platelets...did you have the JAK2 test yet? It is the...

https://connect.mayoclinic.org/comment/941830/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

I’m pretty much the same as jackiecarry above. I’m 71 and had a JAK2 positive reading...

https://connect.mayoclinic.org/comment/1141239/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

I wonder what stats are for ET Jak2, if taking HU+baby aspirin, and still get a...

https://connect.mayoclinic.org/comment/1089089/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

She decided to put me on an iron supplement and do a JAK2 test to figure...

https://connect.mayoclinic.org/comment/298975/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2020

I also have ET JAK2 taking HU. My primary tested me some years before diagnosis, and...

https://connect.mayoclinic.org/comment/801452/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Jak2 is negative...they keep telling me it's from smoking but I don't fit the profile and...

https://connect.mayoclinic.org/comment/1137758/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Hi Barbie......I have jak2.....myeloproliferative neoplasm, I believe it is similar to pv. Chronic fatigue most of...

https://connect.mayoclinic.org/comment/194342/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

@ebertolis Hi Eva, Thank you for the information. I am 81. I have been taking Hydroxyurea...

https://connect.mayoclinic.org/comment/1513801/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:41pm

Curious if your doctors are tracking your JAK2 Variant Allele Frequency (VAF) on a regular basis?...

https://connect.mayoclinic.org/comment/1550728/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 8:13pm

@1pearl I also have an enlarged sternoclavicular joint that they are going to do a steroid...

https://connect.mayoclinic.org/comment/1475953/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:48pm

Hi, I am in the USA and no bone marrow biopsy was done on me to...

https://connect.mayoclinic.org/comment/1216299/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

@sdcgcarroll Hi I have ET and Jak2 as well. I haven't found alot of information about...

https://connect.mayoclinic.org/comment/1545394/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 7:26am

I was 65 years old and was diagnosed with ET/Jak2 mutation. My platelet count was 1...

https://connect.mayoclinic.org/comment/786781/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

I was on keto better than 1 yr. Lost intended weight pcp extremely happy with labs...

https://connect.mayoclinic.org/comment/645538/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

@sonieaml I was diagnosed with MDS/MPN/sMF in 2017. The molecular panel indicated I have the JAK2,...

https://connect.mayoclinic.org/comment/1551139/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 10:51am

Hi Karen, I am unfamiliar with TET2 mutation. I have ET JAK2. I live in the...

https://connect.mayoclinic.org/comment/783703/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I was put on hydroxyurea when first diagnosed with JAK2/PV about a year ago and side-effects...

https://connect.mayoclinic.org/comment/828776/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

yes, my hemo didn't think my bone pain in shin and toes was from ET Jak2,...

https://connect.mayoclinic.org/comment/798768/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023