Blood Cancers & Disorders: Discussions | Page 20

After reading that so many JAK2 people experience being weak or tired, and have balance issues,...

https://connect.mayoclinic.org/comment/194344/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

Hmm, I think @1pearl mentioned that her platelet levels are dropping without meds and that she...

https://connect.mayoclinic.org/comment/1248005/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1 11:08am

Hi @taisaint, You’re absolutely in the right section…no worries. ☺️. You have a great daughter who...

https://connect.mayoclinic.org/comment/968475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

I was just diagnosed with Jak2/ET and had a bone marrow biopsy that ruled out other...

https://connect.mayoclinic.org/comment/1193558/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Thanks. It's helpful to hear your experience. Did your platelets stay stable over time and then...

https://connect.mayoclinic.org/comment/943016/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

I was diagnosed with the same jak2 positive and my platelets are in the 500’s. Hydro...

https://connect.mayoclinic.org/comment/929131/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

From my understanding PV doesn’t run in families. It’s usually caused by an acquired mutation in...

https://connect.mayoclinic.org/comment/1239444/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 6:42pm

My wife, who is 72 was recently diagnosed with ET. She had a blood test prior...

https://connect.mayoclinic.org/comment/1145648/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

Wow, Lynne....What an amazing amount of easy to understand information. My platelets have now been in...

https://connect.mayoclinic.org/comment/955755/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

Hi Robert, Be patient with HU. I am 78 and my hematologist informs me that my...

https://connect.mayoclinic.org/comment/829989/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Yes I’ve been to my local specialist hematologist and to a hematologist in Houston as well....

https://connect.mayoclinic.org/comment/825898/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

So how was your ET, JAK2 Positive diagnosed? Did your Hematologist or Oncologist do a bone...

https://connect.mayoclinic.org/comment/194361/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087422/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I am jak2 positive. On a low dose of Asa and Hydroxurea x 3 years. I...

https://connect.mayoclinic.org/comment/957213/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

I was told before I had the Jak2 positive that if it were Polycythemia secondary that...

https://connect.mayoclinic.org/comment/896033/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

Hi all.having been diagnosed with two mutations jak2 and calf ihave been on double dosage of...

https://connect.mayoclinic.org/comment/1288834/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24 10:18am

I have ET Jak2 x 18 months now 71 yr old active, vegetarian , on ASA...

https://connect.mayoclinic.org/comment/1191460/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Blood Cancers & Disorders Support Group