Blood Cancers & Disorders: Discussions | Page 20

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I am almost 72, with JAK2 diagnosed a year ago, no history of thrombosis. My hematologist/oncologist...

https://connect.mayoclinic.org/comment/1026479/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 7:17am

I definitely would ask about this - and ask for this testing if not done. For...

https://connect.mayoclinic.org/comment/1102239/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9 10:37am

A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...

https://connect.mayoclinic.org/comment/796537/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

I think it's important to have a complete blood workup and a bone marrow biopsy and...

https://connect.mayoclinic.org/comment/1162900/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26 8:55am

I have an appointment in a little over a week. I have already been diagnosed with...

https://connect.mayoclinic.org/comment/1152427/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 5 1:08pm

I was diagnosed just about a year ago with PV. Been on Hydrea since May. My...

https://connect.mayoclinic.org/comment/842778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

I was diagnosed in Jan 2023 with PV I was 56 and no health issues or...

https://connect.mayoclinic.org/comment/1073615/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 24 6:55am

Good Morning. I have the Jak2 mutation and diagnosed with ET. I have been on Hydroxyuria...

https://connect.mayoclinic.org/comment/856246/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

now into my 4th year of HU for ET Jak2. My platelets rose for 3 years...

https://connect.mayoclinic.org/comment/1044045/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 2 8:30am

Did your family doctor do the needle biopsy? I also had a benign goiter and non...

https://connect.mayoclinic.org/comment/878180/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11 1:47pm

Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost...

https://connect.mayoclinic.org/comment/794995/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Good morning huronshores.......I have been taking Hydrea for almost two years and have back and joint...

https://connect.mayoclinic.org/comment/146309/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2020

I had seven vaccines in 2021 (3 Covid, 2 Shingrix, flu, Tdap booster. I developed psoriasis...

https://connect.mayoclinic.org/comment/815858/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@ettap I was wondering if you could give me any updates on your case. I have...

https://connect.mayoclinic.org/comment/194271/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Hi shenriq, I have been taking Hydrea for 20+ years for ET. It keeps my platelet...

https://connect.mayoclinic.org/comment/203931/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

I have been taking daily 600mgs of HU for 6 yrs (Droxia formulation). When I started...

https://connect.mayoclinic.org/comment/1168197/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 4 6:05pm

Blood Cancers & Disorders Support Group