Blood Cancers & Disorders Support Group

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Comments (925)

Hi Robert, Be patient with HU. I am 78 and my hematologist informs me that my...

https://connect.mayoclinic.org/comment/829989/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Wow, Lynne....What an amazing amount of easy to understand information. My platelets have now been in...

https://connect.mayoclinic.org/comment/955755/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

Yes I’ve been to my local specialist hematologist and to a hematologist in Houston as well....

https://connect.mayoclinic.org/comment/825898/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

So how was your ET, JAK2 Positive diagnosed? Did your Hematologist or Oncologist do a bone...

https://connect.mayoclinic.org/comment/194361/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2020

I was diagnosed with the same jak2 positive and my platelets are in the 500’s. Hydro...

https://connect.mayoclinic.org/comment/929131/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

I was told before I had the Jak2 positive that if it were Polycythemia secondary that...

https://connect.mayoclinic.org/comment/896033/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

I am jak2 positive. On a low dose of Asa and Hydroxurea x 3 years. I...

https://connect.mayoclinic.org/comment/957213/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087422/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 4:23pm

Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/820581/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I began taking hydroxyurea ( 2 x 500 mg) on Friday and am in day 4....

https://connect.mayoclinic.org/comment/597470/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Hello, I was recently diagnosed with PV in January. Originally my PC saw my red cells...

https://connect.mayoclinic.org/comment/870205/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Yes, HU lowers platelets. Mine went from a high of 800s to the 400s. It took...

https://connect.mayoclinic.org/comment/1152435/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 5 1:31pm

International Prognostic Score for ET Patient age less than 60 (0 points) Older than 60 (1...

https://connect.mayoclinic.org/comment/782535/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

When I got second shingles shot, my platelet count plummeted, was of concern to Hemo, but...

https://connect.mayoclinic.org/comment/1131106/

Discussion: COVID infection is terrible

Support Group: Blood Cancers & Disorders

Posted: Aug 26 10:56am

I had a platelet count of 847,000 a d was told I had ET and was...

https://connect.mayoclinic.org/comment/252023/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

Hello Everyone, Met with Hematologist today. Expectedly so, based on Jak2 detection and blood counts level,...

https://connect.mayoclinic.org/comment/937118/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023