Blood Cancers & Disorders Support Group

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Comments (1,102)

Hi Steve, Welcome to this wonderful site. I have ET JAK2 and have found the site...

https://connect.mayoclinic.org/comment/800839/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

I have had ET, JAK2 positive, for 12 years. Received no treatment until 20 months ago...

https://connect.mayoclinic.org/comment/997147/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

Welcome @zinsam, I moved your message to this existing discussion about thrombocythemia so you can connect...

https://connect.mayoclinic.org/comment/893506/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27 7:38am

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

Hello Scott- My oncologist did the bone marrow procedure 3 years ago and confirmed the cause...

https://connect.mayoclinic.org/comment/652292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2021

I can understand the 2 words cancer and chemo are extremely scary. But with ET Jak2,...

https://connect.mayoclinic.org/comment/1091505/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Hello, I didn’t start on HD until mine hit 842. After 3 months I’m down to...

https://connect.mayoclinic.org/comment/1026054/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

I have seen two hematologists, both very good with evaluating and treating the ET, but have...

https://connect.mayoclinic.org/comment/831683/

Discussion: Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

For what it’s worth, some docs call this a cancer while others say it’s a neoplasm....

https://connect.mayoclinic.org/comment/1061678/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:15am

I have been taking Eliquis for AFib for several years. This was ordered by my cardiologist....

https://connect.mayoclinic.org/comment/811705/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Hi donlynn, I moved your questions to this existing discussion on the same topic of JAK2...

https://connect.mayoclinic.org/comment/599836/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Hi Barbie 75....I also have jak2 and take 500mg Hyderabad six days a week. I still...

https://connect.mayoclinic.org/comment/194338/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2019

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow...

https://connect.mayoclinic.org/comment/894762/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Does have tested positive for JAK2 mutation mean you have a MPN? Very confused. I was...

https://connect.mayoclinic.org/comment/763106/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022