Blood Cancers & Disorders: Discussions | Page 1

My wife(75 years) was diagnosed CNS lymphoma 2.5 years ago and treated with M-RVP plus Cytarabine...

https://connect.mayoclinic.org/comment/895063/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

It does appear that Vidaza is no longer working. However, my doctor started a high dose...

https://connect.mayoclinic.org/comment/1234512/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 1:10pm

I started showing signs almost two years ago and was diagnosed over a year ago with...

https://connect.mayoclinic.org/comment/1255408/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 10:29am

Thanks so much for sharing your journey. You are very strong and a great example for...

https://connect.mayoclinic.org/comment/1250366/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4 12:50pm

Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and...

https://connect.mayoclinic.org/comment/1071669/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders...

https://connect.mayoclinic.org/comment/1062004/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

I’m interested in this discussion. I had been diagnosed with ITP years ago, no treatment, well...

https://connect.mayoclinic.org/comment/750627/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 3:24pm

treehouse5437 Reading your post i wondered if you are at the very start of treatment or...

https://connect.mayoclinic.org/comment/1244913/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 7:23pm

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

ITP is an autoimmune disease, also called idiopathic thrombocytopenia, that attacks the body’s platelets, so you...

https://connect.mayoclinic.org/comment/194331/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

The Government has acknowledged that the drinking water at Camp Lejeune was contaminated from 1954 to...

https://connect.mayoclinic.org/comment/194350/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

Hi @jschellhaas. Honestly, I don’t think anyone is ever ready for chemo. I’ve been there myself...

https://connect.mayoclinic.org/comment/1198337/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Pixiesusan, so good to hear back from you. My first bone biopsy in Oct. of 21...

https://connect.mayoclinic.org/comment/1151293/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

We certainly are on a journey, and I have realized how little I know about what...

https://connect.mayoclinic.org/comment/1151321/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Hi @smetzing I’m wondering how your husband is doing. Was there any mention of having another...

https://connect.mayoclinic.org/comment/940148/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2023

Hello. I was diagnosed with MDS (iso 5q deletion) 3 1/2 years years ago at age...

https://connect.mayoclinic.org/comment/924375/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

I have MDS and MGUS (which is the precursor to MM). I am going to be...

https://connect.mayoclinic.org/comment/1017373/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Blood Cancers & Disorders Support Group