Blood Cancers & Disorders Support Group | Page 17

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

Aransep for MDS not anemia. Since beginning of diagnosis. Keeps HGB up to 10 if possible....

https://connect.mayoclinic.org/comment/1071677/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

Hi just wondering if anyone with MDS has experienced rash on face and neck. I have...

https://connect.mayoclinic.org/comment/948726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take...

https://connect.mayoclinic.org/comment/777367/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

I am a newcomer to MDS! Been getting the injections and taking the pills, however they...

https://connect.mayoclinic.org/comment/1378322/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

I have CLL that was treated in 2016, 2017-2019. Hemaglobin rose to 15 million in 2020,...

https://connect.mayoclinic.org/comment/828716/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

I am feeling well. A little tired, but that seems to be a common side effect...

https://connect.mayoclinic.org/comment/1180958/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

With your MDS you aren’t able to produce enough red blood cells. Aransep, developed for patients...

https://connect.mayoclinic.org/comment/1071684/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I was diagnosed last April with MDS with anemia. I am taking hormone injections to help...

https://connect.mayoclinic.org/comment/1526759/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:59am

Hi I have MDS with 5Q and started taking Lenalidomide about 2 1/2 weeks ago. I...

https://connect.mayoclinic.org/comment/1256422/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Your husband is post transplant? Did he have lgl previous? My husband has MDS too and...

https://connect.mayoclinic.org/comment/1111658/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

@colleenyoung I have been taking lenalidomide for 4 years. Dr. Reddy version for a year. I...

https://connect.mayoclinic.org/comment/1446065/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2025

@bromlj1 - I’m deeply sorry you’re navigating a high-risk MDS diagnosis—it’s a lot to take in....

https://connect.mayoclinic.org/comment/1313015/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 26, 2025

I had bloodwork yesterday, and my red and white cells are in the normal range, but...

https://connect.mayoclinic.org/comment/1146970/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

@katgob you continue to inspire. My husband is now 15 months after SCT for high risk...

https://connect.mayoclinic.org/comment/1448097/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 27, 2025

Hi @asarnesejr There is another member in the forum, @sherbs, who was diagnosed with MDS with...

https://connect.mayoclinic.org/comment/1393724/

Discussion: Anyone familiar with DDX41?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

Good Afternoon, I am living with MDS and ITP. So far the treatment has been NPLATE...

https://connect.mayoclinic.org/comment/1385972/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

Hi @gothman. It’s been several months since our last conversation and I wanted to check in...

https://connect.mayoclinic.org/comment/1266769/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2025

I have MDS SF3B1 and my Hgb currently is 9.9 and I have those same symptoms....

https://connect.mayoclinic.org/comment/1464401/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

I have had afib for fifty years and was diagnosed last year for pv. Cardiologists and...

https://connect.mayoclinic.org/comment/770824/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022