T cell large granulocytic leukemia

Posted by dburkert @dburkert, Jun 2 7:28pm

Good evening,
Does anyone have information regarding T cell Large Granulocytic leukemia?
Thank you

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Welcome @dburkert, The Leukemia & Lymphoma Society (LLS) has information on the condition that may be helpful – https://www.lls.org/leukemia/large-granular-lymphocytic-leukemia.

Do you mind sharing what answers or type of information you are looking?

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Are there physicians who specialize in various types as I am told this is somewhat rare.

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@dburkert

Are there physicians who specialize in various types as I am told this is somewhat rare.

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Good morning @dburkert, my suggestion would be to find a large teaching hospital or better yet, make an appointment with Mayo Clinic. Here’s the link to get your appointment request started. http://mayocl.in/1mtmR63

Dr. Grzegorz Nowakowski, a hematologist at Mayo Clinic has a video on T-Cell Granulocytic Leukemia you might find helpful.

Mayo Clinic doctor

Have you been recently been diagnosed with this form of leukemia?

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@dburkert

Are there physicians who specialize in various types as I am told this is somewhat rare.

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Hi @dburkert, I thought I would check in. Have you been diagnosed with T-cell large granular lymphocyte leukemia? How are you doing?

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@colleenyoung

Hi @dburkert, I thought I would check in. Have you been diagnosed with T-cell large granular lymphocyte leukemia? How are you doing?

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hello Collen and thank you for asking. I think you would call it the stage of checking and waiting but mentioned as an option if that describes it well enough. the term itself threw me for a loop and in my confusion I came here. Referred to hematology for multiple years of high white counts.

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