Blood Cancers & Disorders Support Group

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Comments (916)

I was diagnosed with MGUS in 2009, when it was found during some routine blood tests....

https://connect.mayoclinic.org/comment/899009/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@lgeorge, I had to look up this new treatment option for patients with myeloma that uses...

https://connect.mayoclinic.org/comment/873180/

Discussion: Bispecific antibodies For Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

I have multiple myeloma, had chemo and stem cell transplant in January 2025, then put on...

https://connect.mayoclinic.org/comment/1415294/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2025

@treinbold Going onto treatment for a condition, when that condition has not been diagnosed, can be...

https://connect.mayoclinic.org/comment/915138/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

I am 68 years old and diagnosed with kappa light chain deposition disease. My kidney function...

https://connect.mayoclinic.org/comment/803898/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

@tsch You have had good responses from @wesleym and @pmm2001 For myself, noone else in my...

https://connect.mayoclinic.org/comment/1357941/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

I didn’t realize your dad was already a patient at Mayo. From personal experience, I know...

https://connect.mayoclinic.org/comment/1217696/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

@skate Welcome to the Mayo Clinic Connect forum. I agree with Ginger that “watch and wait”...

https://connect.mayoclinic.org/comment/1182896/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

I came here today to see if anyone else has this. I too have wooziness. I...

https://connect.mayoclinic.org/comment/924903/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

@pnpam75 MM is shorthand for Multiple Myeloma. MGUS is often considered a precursor to this, a...

https://connect.mayoclinic.org/comment/1062610/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Hi @beaudog, waiting for a diagnosis and treatment is always such a challenging time. I’m sure...

https://connect.mayoclinic.org/comment/726192/

Discussion: Husband diagnosed with smothering myeloma and AI amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2022

I was a medical social worker for the last 15 years of my career, and I...

https://connect.mayoclinic.org/comment/873167/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

@3419harrison my kidney biopsy confirmed my multiple myeloma, But I don’t believe it diagnosed my amitosis....

https://connect.mayoclinic.org/comment/1113125/

Discussion: Amyloidosis diagnosed through blood tests: Kidney biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

The mind-body connection is so important. Anxiety can really throw your whole body chemistry for a...

https://connect.mayoclinic.org/comment/869269/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Don't assume I have any medical knowledge about MGUS or anything else. I don't even fully...

https://connect.mayoclinic.org/comment/1180120/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

I as well have mGus and also was told that an extremely small percentage of mGus...

https://connect.mayoclinic.org/comment/1168679/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

@cat1952 Welcome to Mayo Clinic Connect. Things constantly change in the world of treatments for multiple...

https://connect.mayoclinic.org/comment/822527/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

@jerry48 Welcome to Mayo Clinic Connect! I am glad you found us, and will be able...

https://connect.mayoclinic.org/comment/1485043/

Discussion: Lymphoplasmacytic Lymphoma that is not WM?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 6:19pm

My wife achieved MRD negative status with Multiple Myeloma before her SCT, but went ahead with...

https://connect.mayoclinic.org/comment/1413919/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2025

Thank You for sharing your story! My husband was just diagnosed with Kidney Failure, extremely anemic...

https://connect.mayoclinic.org/comment/1368473/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2025

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