Blood Cancers & Disorders Support Group | Page 15

I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...

https://connect.mayoclinic.org/comment/1164101/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

My husband was diagnosed with myelofibrosis in January this year2025. His platelets stay low most of...

https://connect.mayoclinic.org/comment/1439773/

Discussion: Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

Hi @bjsdancer, I'm tagging @rcand10s who wrote about being diagnosed with Primary Myelofibrosis in 2013. I'm...

https://connect.mayoclinic.org/comment/101833/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

@loribmt - in reference to the pet question above and overall survivorship plan question. I am...

https://connect.mayoclinic.org/comment/1370713/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 14, 2025

Hi, I have had Essential Thrombocythemia for over 15 years. I was on Anagrelide, and this...

https://connect.mayoclinic.org/comment/1202567/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

My husband has been diagnosed with myeloid Metaplasia with Myelofibrosis . White count was 30,000 and...

https://connect.mayoclinic.org/comment/101832/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

@carolgk Hi Carol, You have a bit of an adventure ahead with the upcoming allo-stem cell...

https://connect.mayoclinic.org/comment/1511032/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:58am

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

@susanvij I'm so sorry to hear of your brother's diagnosis. I understand that this is a...

https://connect.mayoclinic.org/comment/50509/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

Hi @mickie6. I’ve not heard of the Jakafi Box test. I’m aware that when patients are...

https://connect.mayoclinic.org/comment/1552701/

Discussion: Has anyone had the Jakifi box test? My Blood % is 0!

Support Group: Blood Cancers & Disorders

Posted: Apr 17 9:59am

I see my additional messages may not have reached you. Go to pvreporter . com. There...

https://connect.mayoclinic.org/comment/1259837/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

I took my first injection of Besremi last week. My doctor's office is working on setting...

https://connect.mayoclinic.org/comment/1234766/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Primary myelofibrosis was diagnosed in September 2019. Have had monthly transfusions, usually 1 pint, with HGB...

https://connect.mayoclinic.org/comment/1398262/

Discussion: Chelation therapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Hi katgob, I'm certainly not one to diagnose your situation. But, I will tell you that...

https://connect.mayoclinic.org/comment/986132/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 24, 2023

Hi @winniegirl You’re never alone here in Connect. We may be miles apart, sitting behind our...

https://connect.mayoclinic.org/comment/1580451/

Discussion: Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Support Group: Blood Cancers & Disorders

Posted: 4 hours ago

Hi davi0937, Like you, I was diagnosed with primary myelofibrosis but that was one month after...

https://connect.mayoclinic.org/comment/1338448/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2025

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:17am